De Montfort University, Leicester School of Allied Health Sciences, The Gateway, LE1 9BH, United Kingdom.
De Montfort University, Leicester School of Allied Health Sciences, The Gateway, LE1 9BH, United Kingdom.
Soc Sci Med. 2020 Aug;259:113148. doi: 10.1016/j.socscimed.2020.113148. Epub 2020 Jun 29.
Most research on sickle cell disorders has tended to be gender-blind. This qualitative study undertaken in 2018, explores if and how sickle cell disorders become gendered in Sierra Leone through the analytical framework of a feminist ethics of care. It argues that women have to navigate moral blame when they have children with the condition. At the same time women refashion moral boundaries so that gendered norms around childhood and parenting for such children become suspended, in favour of creation of careful spaces. Parental fears of physical and sexual violence mean that gendered sexual norms are enforced for teenage boys as they are encouraged into early adulthood. In contrast, girls are kept in enforced ignorance about the consequences of sickle cell for reproduction and are encouraged to delay motherhood. This is because, as women relate, relationships and giving birth are fraught with embodied dangers and risks of violence.
大多数镰状细胞病相关研究都存在性别盲视。本研究于 2018 年开展，通过关怀伦理的女性主义分析框架，探讨在塞拉利昂镰状细胞病是如何以及在何种程度上呈现出性别化特征。研究认为，当女性生育患有镰状细胞病的孩子时，她们必须承受道德指责。与此同时，女性重塑了道德界限，使得围绕此类儿童的童年和养育的性别规范暂时中止，转而营造精心呵护的空间。父母担心孩子会遭受身体和性暴力，这意味着十几岁的男孩要被鼓励尽早成年，因此要对其进行强制性的性别规范教育。相比之下，女孩对于镰状细胞病对生育的影响一无所知，而且被鼓励推迟生育。这是因为正如女性所描述的那样，生育和两性关系充满了身心危险和暴力风险。
