Erős Adrienn, Veres Gábor, Tárnok András, Dohos Dóra, Otto Caroline, Szakács Zsolt, Hegyi Péter, Vincze Áron, Sarlós Patrícia
Institute for Translational Medicine, Medical School, University of Pécs, Hungary; Szentágothai Research Centre, Medical School, University of Pécs, Hungary; Heim Pál Children's Hospital, Hungary.
Department of Paediatrics, Medical School, University of Debrecen, Hungary.
J Pediatr Nurs. 2020 Nov-Dec;55:e279-e285. doi: 10.1016/j.pedn.2020.06.002. Epub 2020 Jul 3.
Since little is known about transitional care practices of adolescents with inflammatory bowel diseases (IBD) in Central-Eastern Europe, we aimed to investigate the currently applied transition practices in Hungary.
A nationwide, multicentre survey was conducted with the invitation of 41 pediatric and adult IBD centres in February 2019.We developed a 34-item questionnaire, which included single- and multiple-choice questions related to the current clinical practice of IBD transition.
The overall response rate was 31.7% (13/41); answers came predominantly from tertiary centres. Only 15.4% of the respondent centres followed international IBD guidelines. The majority of the IBD centres provided transition support; however, responses revealed a marked heterogeneity of these services. Joint visits were held only in 54% of the clinics. Gastroenterologists and next of kin are not provided education regarding transition across most centres (85 and 92%). Although adolescents received age-specific education, transition readiness was not measured. More IBD nurses and dietitians were employed in adult centres than in pediatric ones.
The current survey revealed critical gaps in the Hungarian IBD transition practices. As the beneficial effects of structured IBD transition programmes are recognized in Hungary, there is a growing need for the introduction of new, more effective transition practices.
Our results can serve as a basis for planning more effective transition strategies.
由于中东欧地区关于炎症性肠病（IBD）青少年的过渡性护理实践知之甚少，我们旨在调查匈牙利目前应用的过渡性护理实践。
2019年2月，在匈牙利41个儿科和成人IBD中心的邀请下开展了一项全国性的多中心调查。我们编制了一份包含34个条目的问卷，其中包括与IBD过渡当前临床实践相关的单项选择题和多项选择题。
总体回复率为31.7%（13/41）；回复主要来自三级中心。只有15.4%的受访中心遵循国际IBD指南。大多数IBD中心提供过渡性护理支持；然而，回复显示这些服务存在明显的异质性。只有54%的诊所进行联合就诊。大多数中心（85%和92%）未为胃肠病学家和近亲提供关于过渡性护理的教育。尽管青少年接受了适合其年龄的教育，但未对过渡准备情况进行评估。成人中心雇佣的IBD护士和营养师比儿科中心更多。
当前的调查揭示了匈牙利IBD过渡性护理实践中的关键差距。由于匈牙利已认识到结构化IBD过渡计划的有益效果，因此越来越需要引入新的、更有效的过渡性护理实践。
我们的结果可为制定更有效的过渡策略提供依据。
