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津巴布韦哈拉雷地区精神分裂症患者生活质量和经历的民族志研究

Ethnographic Insights into the Quality of Life and Experiences of People Living with Schizophrenia in Harare, Zimbabwe.

机构信息

School of Nursing, University of Tasmania, Launceston, Tasmania, Australia.

School of Health Sciences, University of Tasmania, Launceston, Tasmania, Australia.

出版信息

Issues Ment Health Nurs. 2021 Jan;42(1):65-78. doi: 10.1080/01612840.2020.1770385. Epub 2020 Jul 7.

DOI:10.1080/01612840.2020.1770385
PMID:32633167
Abstract

Schizophrenia is a complex and severe mental disorder affecting more than 20 million people worldwide. This study used focused ethnography to explore the everyday lives of 18 people living with schizophrenia in Zimbabwe and its impact on their quality of life (QOL). Data were collected using semi-structured interviews, observational fieldwork, and the short form of the World Health Organization QOL-BREF questionnaire. Those aged 20-40 years experienced poorer QOL than older people. Family dislocation, living with stigma and discrimination, cost of medications and limited and variable access to treatment and support disrupted participants' ability to enjoy life and function socially.

摘要

精神分裂症是一种复杂且严重的精神障碍,影响着全球超过 2000 万人。本研究采用聚焦民族志方法,探索了津巴布韦 18 名精神分裂症患者的日常生活及其对生活质量(QOL)的影响。数据收集采用半结构化访谈、观察性实地调查和世界卫生组织生活质量简表问卷。20-40 岁的患者生活质量较老年人差。家庭离散、受污名化和歧视、药物费用、以及治疗和支持机会有限且不稳定,这些因素破坏了患者享受生活和进行社会交往的能力。

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