The University of Scranton, Scranton, PA, USA.
Duquesne University, Pittsburgh, PA, USA.
J Transcult Nurs. 2021 Jul;32(4):344-349. doi: 10.1177/1043659620938127. Epub 2020 Jul 7.
Genetic literacy recognizes one's ability to gather, understand, and apply genomic information to make informed health care choices and social decisions. A limited understanding of genomic literacy carries the potential for poor health outcomes. The aim of this pilot study was to determine the usefulness of an assessment tool to ascertain genetic literacy in a small Hispanic clinic population. Mixed-method, cross-sectional pilot study requiring forward-back translation of an established questionnaire. Twenty Spanish-speaking adults were recruited through purposive and convenience sampling. Forward-back translation provided a comparable questionnaire. Participants indicated information was relevant. Qualitative feedback uncovered regional differences. Quantitative results reported descriptive statistics, frequencies, and Cronbach alphas. Findings from this study reveal the need for genetic literacy assessment tools that are attuned to the linguistic, ethnic, and cultural differences within the Hispanic population.
遗传素养是指个体获取、理解和应用基因组信息,从而做出明智的医疗保健决策和社会决策的能力。遗传素养的理解有限可能会导致不良的健康结果。本试点研究旨在确定一种评估工具在一个小型西班牙裔诊所人群中评估遗传素养的有用性。
混合方法、横断面试点研究需要对已建立的问卷进行正向-反向翻译。通过目的性和便利性抽样,招募了 20 名讲西班牙语的成年人。正向-反向翻译提供了一个可比的问卷。参与者表示信息是相关的。定性反馈揭示了区域差异。定量结果报告了描述性统计、频率和克朗巴赫阿尔法。本研究的结果表明,需要有遗传素养评估工具,这些工具要适应西班牙裔人群中的语言、民族和文化差异。