Department of Pediatrics, University of Florida, Pensacola, Florida, USA.
Department of Psychology, Center for Behavioral Health, Johns Hopkins All Children's Hospital, St. Petersburg, Florida, USA.
J Psychosoc Oncol. 2020 Nov-Dec;38(6):702-713. doi: 10.1080/07347332.2020.1786876. Epub 2020 Jul 7.
This study aimed to determine if AYA oncology patients experienced a quantifiable improvement in psychosocial outcomes after attending a weekend retreat with their peers.
AYA oncology patients attended a weekend retreat. They completed the Functional Assessment of Cancer Therapy - General (FACT-G) before, 1 month after, and 6 months after the weekend retreat. Controls were age-matched oncology patients who did not attend the retreat.
Retreat participants' scores did not significantly change over time; however, retreat participants' scores at 1-month follow-up were significantly higher than control group scores.
AYA oncology patients may experience transient improvement in psychological well-being after attending a retreat, but benefits may not be durable. Work remains needed to examine the impact of retreat attendance on specific aspects of psychosocial well-being. Work is needed to decrease perceived attendance barriers for AYA oncology patients who have a low quality of life. Future retreat planners may consider modifying retreat activities and consider alternative retreat locations that appeal to campers with limited mobility, chronic pain, and/or other quality of life limitations. Additional study is needed to determine whether brief overnight or weekend retreats can be as effective as week-long camps in enhancing oncology patients' quality of life. Future researchers should compare changes in weekend retreat attendees' quality of life to changes in quality of life for a control group (e.g., via a waitlist control study design).
本研究旨在确定参加同龄患者周末静修后，青少年和年轻成人肿瘤患者的心理社会结局是否有可量化的改善。
青少年和年轻成人肿瘤患者参加周末静修。他们在参加周末静修前、1 个月后和 6 个月后完成癌症治疗功能评估-一般量表（FACT-G）。对照组为未参加静修的年龄匹配的肿瘤患者。
静修参与者的分数没有随时间显著变化；然而，静修参与者在 1 个月随访时的分数明显高于对照组的分数。
青少年和年轻成人肿瘤患者在参加静修后可能会短暂改善心理健康状况，但益处可能不持久。仍需要研究静修参加对心理社会健康特定方面的影响。需要努力减少生活质量低的青少年和年轻成人肿瘤患者对参加静修的感知障碍。未来的静修策划者可能会考虑修改静修活动，并考虑对行动不便、慢性疼痛和/或其他生活质量限制的露营者有吸引力的替代静修地点。需要进一步研究确定短暂的过夜或周末静修是否可以像为期一周的营地一样有效地提高肿瘤患者的生活质量。未来的研究人员应将周末静修参与者生活质量的变化与对照组生活质量的变化进行比较（例如，通过候补名单对照研究设计）。
