Benjamin C
Dept. of Rheumatology, Withington Hospital, Manchester, U.K.
Z Kinderchir. 1988 Dec;43 Suppl 2:12-4. doi: 10.1055/s-2008-1044145.
Residents of Sheffield, U.K., aged 16-21 years with myelomeningocele were interviewed to ascertain morbidity in the preceding 12 mths., current and past use of hospital and community health care resources, and dependence on carers. Twenty-one patients, representing 49% of those known to paediatric services, responded. In the previous year, 71% of the group had been ill due to their spina bifida. 81% of subjects received hospital supervision, mostly by a urologist. Many hospital contacts had been lost, mostly by age 18 years. Little use was made of community health services or general practitioners. The majority of patients were dependent on their parents for management of incontinence, and care of skin vulnerable to pressure sores. 52% of respondents were dissatisfied with current provision of health care. Particular need was expressed for community nurses and physiotherapists.
对英国谢菲尔德16至21岁患有脊髓脊膜膨出症的居民进行了访谈，以确定其过去12个月的发病率、目前及过去对医院和社区医疗资源的使用情况，以及对护理人员的依赖程度。21名患者（占儿科服务已知患者的49%）做出了回应。在前一年，该组中71%的人因脊柱裂患病。81%的受试者接受医院监管，主要由泌尿科医生负责。许多医院的联系都中断了，大多在18岁时。社区卫生服务或全科医生的使用很少。大多数患者在大小便失禁管理以及易患压疮皮肤护理方面依赖父母。52%的受访者对当前的医疗保健服务不满意。他们特别表示需要社区护士和物理治疗师。
