Ward Family Heart Center, Children's Mercy Hospital, Kansas City, Missouri, USA.
School of Nursing, University of Missouri-Kansas City, Kansas City, Missouri, USA.
J Spec Pediatr Nurs. 2020 Oct;25(4):e12303. doi: 10.1111/jspn.12303. Epub 2020 Jul 14.
Single ventricle heart disease is fraught with risk for infant mortality and morbidity. During the interstage period, or the time between palliative cardiac surgeries, mobile health (mHealth) technology improves the ability of registered nurse coordinators to monitor infant symptoms through parental monitoring and reporting. The concept of parental mHealth adherence to symptom home monitoring of infants with single ventricle congenital heart disease has not been defined, despite increasing use of mHealth technology.
Rodger's concept analysis method was used to derive a unified definition of parental mHealth adherence to symptom home monitoring of infants with congenital heart disease during the single ventricle interstage period. A literature review included a search of databases for studies that addressed interstage home mHealth monitoring. Thematic analysis was applied to selected articles to derive a unified definition based on attributes, antecedents, consequences, related terms, and an illustrative case example. Sixteen publications were selected. Attributes, antecedents, and consequences of the concept were derived from the literature leading to a definition of parental mHealth adherence for infants with congenital heart disease during the single ventricle interstage period. The definition is the degree of adherence to which parents' transfer mHealth data for their infant meet healthcare providers' recommendations for symptom home monitoring. Consequences were improved infant symptom home monitoring through parental mHealth adherence measured by initiation, implementation, and discontinuation.
The unified definition of the concept will provide a firmer ground for research in mHealth and interstage pediatric care and a guide for clinicians in developing new mHealth interventions for symptom home monitoring.
This concept analysis hypothesizes that infants with a single ventricle during the interstage period, whose parents are mHealth symptom home monitoring adherent, will have timelier symptom identification with resultant superior outcomes compared with infants with a single ventricle during the interstage period whose parents are not mHealth adherent.
单心室心脏病患儿死亡率和发病率高。在中间期，即姑息性心脏手术后，移动医疗（mHealth）技术提高了注册护士协调员通过家长监测和报告来监测婴儿症状的能力。尽管 mHealth 技术的使用越来越多，但尚未定义父母对单心室先天性心脏病婴儿进行症状家庭监测的 mHealth 依从性概念。
采用罗格概念分析方法，从属性、前因、后果、相关术语和说明性病例示例等方面，推导出单心室中间期先天性心脏病婴儿父母 mHealth 症状家庭监测依从性的统一定义。文献综述包括对涉及中间期家庭 mHealth 监测的研究进行数据库搜索。对选定的文章进行主题分析，根据属性、前因、后果，推导出一个统一的定义，并给出一个说明性的病例示例。选择了 16 篇文献。从文献中得出该概念的属性、前因和后果，推导出父母对单心室中间期先天性心脏病婴儿 mHealth 依从性的定义。该定义为父母为婴儿传输 mHealth 数据符合医疗保健提供者对症状家庭监测建议的程度。后果是通过父母 mHealth 依从性提高婴儿症状家庭监测，通过启动、实施和停止来衡量。
该概念的统一定义将为 mHealth 和中间期儿科护理研究提供更坚实的基础，并为临床医生开发新的 mHealth 干预措施以进行症状家庭监测提供指导。
该概念分析假设，在中间期患有单心室的婴儿，如果其父母进行 mHealth 症状家庭监测依从性较高，那么与不依从 mHealth 的婴儿相比，他们将能更及时地识别症状，从而获得更好的结果。
