Owens J R, Simpkin J M, McGuinness L, Harris F
Liverpool Congenital Malformations Registry, Institute of Child Health, UK.
Paediatr Perinat Epidemiol. 1988 Jul;2(3):240-52. doi: 10.1111/j.1365-3016.1988.tb00214.x.
Data collection and validation for the Liverpool Congenital Malformations Registry (LCMR) are described. Founded in 1960, the LCMR increased its area of surveillance in 1979 to include five health districts in Liverpool and its environs with approximately 20,000 births per annum. The LCMR is now one of the members of the European Congenital Anomalies Register (EUROCAT). Multiple sources of ascertainment are employed, the most useful of these being OPCS notifications, hospital discharge letters and data from specialised paediatric units. In spite of several difficulties encountered in data collection the data base is an invaluable tool both for routine monitoring of prevalence rates and as a starting point for epidemiological research.
本文描述了利物浦先天性畸形登记处(LCMR)的数据收集和验证情况。LCMR成立于1960年,1979年扩大了监测范围,涵盖利物浦及其周边的五个卫生区,每年约有20000例出生。LCMR现在是欧洲先天性异常登记处(EUROCAT)的成员之一。采用了多种确定病例的来源,其中最有用的是OPCS通知、医院出院信和来自专业儿科单位的数据。尽管在数据收集过程中遇到了一些困难,但该数据库对于患病率的常规监测以及作为流行病学研究的起点都是一个非常宝贵的工具。