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“当孩子身患危及生命的疾病时,很难开口说话”:对被诊断出患有癌症的儿童的夫妇进行的定性研究。

"It's Hard to Talk When Your Child Has a Life Threatening Illness": A Qualitative Study of Couples Whose Child Is Diagnosed With Cancer.

机构信息

UPC KU Leuven, Leuven, Kortenberg, Belgium.

University of Minnesota, Minneapolis, MN, USA.

出版信息

J Pediatr Oncol Nurs. 2020 Nov/Dec;37(6):398-407. doi: 10.1177/1043454220944125. Epub 2020 Aug 4.

DOI:10.1177/1043454220944125
PMID:32748692
Abstract

When parents are confronted with something as fundamental as a cancer diagnosis for their child, it is generally assumed that sharing the emotional impact of it, in the form of talking about it with the partner, is helpful and necessary to cope as an individual and a couple. However, couple communication in the context of childhood oncology is often challenging. In this qualitative research, we aimed for a better understanding of how partners experience their couple communication during treatment of their child. Thematic coding was done on in-depth interviews with 16 parents (7 couples interviewed together and 2 mothers). We found that the circumstances of the treatment period affected couple communication. In the interviews, parents provided three main meanings to their limited talking: (a) because of the hospital and treatment context; (b) for self-care/self-protection related to the value of blocking emotions; and (c) because of each other. These findings invite us to rethink emotional closeness being equated with frequent or intense emotional communication in couples with a child who has cancer. This research, framed in a dialectic approach, emphasizes the value of both talking and not talking in the tense and challenging couple situation of dealing with a child's cancer diagnosis and treatment. Rather than advocating for the general promotion of open communication, our study suggests the value of hesitations to talk at certain points in the process, while also taking into account the degree of marital difficulties in offering interventions aimed at improving couple communication.

摘要

当父母面对孩子被诊断出癌症等基本问题时,人们通常认为,与伴侣谈论这件事,以情感交流的形式来应对,无论是作为个人还是夫妻,都是有帮助且必要的。然而,儿科肿瘤学背景下的夫妻沟通往往具有挑战性。在这项定性研究中,我们旨在更好地理解伴侣在治疗孩子期间如何体验他们的夫妻沟通。对 16 名父母(7 对夫妻一起接受访谈和 2 名母亲)的深入访谈进行了主题编码。我们发现,治疗期间的情况会影响夫妻沟通。在访谈中,父母对他们的有限交流给出了三个主要解释:(a)由于医院和治疗环境;(b)为了自我关怀/自我保护,与抑制情绪的价值观有关;(c)因为彼此。这些发现促使我们重新思考情感亲密是否等同于癌症患儿父母之间频繁或强烈的情感交流。本研究采用辩证方法,强调在处理儿童癌症诊断和治疗的紧张和具有挑战性的夫妻情况下,交谈和不交谈的价值。我们的研究并不是提倡普遍促进开放沟通,而是建议在治疗过程中的某些时刻,考虑到婚姻困难的程度,暂停谈话是有价值的,同时也要考虑到提供旨在改善夫妻沟通的干预措施的程度。

相似文献

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"It's Hard to Talk When Your Child Has a Life Threatening Illness": A Qualitative Study of Couples Whose Child Is Diagnosed With Cancer.“当孩子身患危及生命的疾病时,很难开口说话”:对被诊断出患有癌症的儿童的夫妇进行的定性研究。
J Pediatr Oncol Nurs. 2020 Nov/Dec;37(6):398-407. doi: 10.1177/1043454220944125. Epub 2020 Aug 4.
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"We Hardly Ever Talk about It": Emotional Responsive Attunement in Couples after a Child's Death.“我们几乎从不谈论它”:孩子去世后夫妻之间的情绪共鸣。
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Hope and relationship dynamics among couples faced with their child's cancer: A dyadic phenomenological interpretative analysis.夫妻面对孩子癌症时的希望和关系动态:一项对偶现象学解释性分析。
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