Univ. Lille, CNRS, UMR 9193, SCALab - Sciences Cognitives et Sciences Affectives, F-59000, Lille, France.
Univ. Lausanne - Institut de Psychologie, Laboratoire PHASE de Psychologie de La Santé, Du Vieillissement et Du Sport, CH-1015, Lausanne, Suisse.
Eur J Oncol Nurs. 2024 Oct;72:102690. doi: 10.1016/j.ejon.2024.102690. Epub 2024 Sep 6.
The onset of paediatric cancer leads to changes in the functioning of the parental couple. The interactions and interdependence between partners affect their individual and dyadic adjustments. Hope can enable parents to cope with difficulties and alleviate their distress. The aim of this study is to explore how both partners experience their relationship dynamics and hope within the couple.
This qualitative study focused on 7 couples whose child was in remission from cancer; each parent was interviewed separately. The semi-structured interviews were subjected to interpretative phenomenological analysis.
Three themes were found to characterise the experiences of couples faced with their child's cancer. "Captain and first mate" emphasises the gendered and hierarchical distribution of roles based on the analogy of a crew struggling against the threat of cancer. "The emotional compass" focuses on how emotions guide each partner's attempts to meet their own need for emotional expression and that of their partner. "In the same boat, with divergent hope sails" reflects the complex and diverse ways in which hope and forms of hope are expressed, perceived as a resource which is often precious, sometimes viewed as unthinkable because it reflects the violence associated with the despair of the situation and transferred from one parent to the other.
These findings highlight the need to focus on the organisation of role, the interaction of emotional needs and the dynamics of hope within parental dyads to optimise the management of couples faced with their child's cancer.
儿科癌症的发病导致父母双方的功能发生变化。伴侣之间的相互作用和相互依存关系会影响他们的个体和夫妻调整。希望可以使父母能够应对困难，减轻他们的痛苦。本研究旨在探讨夫妻双方如何在夫妻关系中体验他们的关系动态和希望。
这项定性研究集中在 7 对其孩子癌症缓解的夫妇身上；对每个父母进行了单独的访谈。半结构化访谈进行了解释性现象学分析。
发现三个主题可以描述面对孩子癌症的夫妇的经历。“船长和大副”强调了基于船员与癌症威胁作斗争的类比的性别和等级分配角色。“情感罗盘”侧重于情感如何引导每个伴侣满足自己和伴侣的情感表达需求。“在同一条船上，希望的帆却不同”反映了希望和希望形式表达的复杂和多样化方式，被视为一种资源，这种资源通常是宝贵的，有时被视为不可思议的，因为它反映了与情况绝望相关的暴力，并从一个父母转移到另一个父母。
这些发现强调需要关注父母对子组织、情感需求的相互作用和希望的动态，以优化对面临孩子癌症的夫妇的管理。
