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伊朗痴呆症护理的感知负担、患者及主要照料者的临床、心理和人口统计学特征。

Perceived burden of dementia care, clinical, psychological and demographic characteristics of patients and primary caregivers in Iran.

作者信息

Kamalzadeh Leila, Salehi Mahdiyeh, Rashedi Vahid, Ahmadzad Asl Masoud, Malakouti Seyed Kazem, Seddigh Ruohollah, Almasi-Doghaee Mostafa, Shariati Behnam

机构信息

Mental Health Research Center, Iran University of Medical Sciences, Tehran, Iran.

School of Behavioral Sciences and Mental Health (Tehran Institute of Psychiatry), Iran University of Medical Sciences, Tehran, Iran.

出版信息

Appl Neuropsychol Adult. 2022 Jul-Aug;29(4):627-638. doi: 10.1080/23279095.2020.1798960. Epub 2020 Aug 4.

DOI:10.1080/23279095.2020.1798960
PMID:32749153
Abstract

Caregiving for dependent older adults with dementia has become an important public health issue. However, not much is known about the caregiver experience for caregivers of patients with dementia in Iran. This study was designed to examine the relationship between variables pertaining to primary caregivers and patients and the level of perceived caregiver burden. The participants of this cross-sectional study were 60 caregiver and care-recipient pairs presented to Rasoul-e Akram hospital and Brain and Cognition Clinic, in Tehran, Iran. A sociodemographic questionnaire, the Zarit Caregiver Burden Interview (ZBI), the General health questionnaire-28 (GHQ-28), the NEO Five-Factor Inventory (NEO-FFI), the Spiritual Well-Being Scale (SWBS), the Neuropsychiatric Inventory (NPI), and the Mini-Mental State Examination (MMSE) were used. Descriptive statistics, correlation coefficients, -test, and multiple linear regression analyses were used in this study. Years of caregiving, hours of caregiving/week, total and subscale GHQ-28 scores, existential well-being subscale score on SWBS, and total NPI score were found to be significantly associated with the level of caregiving burden ( < 0.05). In addition, among the caregivers' personality traits, neuroticism and agreeableness predicted caregiver burden. Other sociodemographic factors and MMSE scores were not found to be significantly related to caregiver burden. A better understanding of the indicators of caregiver burden can help physicians, policy makers, and mental health managers to tailor the most appropriate preventative and remedial interventions for family caregivers.

摘要

照顾患有痴呆症的依赖他人生活的老年人已成为一个重要的公共卫生问题。然而,对于伊朗痴呆症患者的照料者的照料经历,我们了解得并不多。本研究旨在探讨与主要照料者和患者相关的变量与感知到的照料者负担水平之间的关系。这项横断面研究的参与者是60对照料者与受照料者,他们来自伊朗德黑兰的拉苏勒·阿克拉姆医院和脑与认知诊所。使用了一份社会人口统计学调查问卷、扎里特照料者负担访谈量表(ZBI)、一般健康问卷-28(GHQ-28)、大五人格问卷(NEO-FFI)、精神幸福感量表(SWBS)、神经精神科问卷(NPI)以及简易精神状态检查表(MMSE)。本研究采用了描述性统计、相关系数、t检验和多元线性回归分析。结果发现,照料年限、每周照料时长、GHQ-28总分及各分量表得分、SWBS量表中存在幸福感分量表得分以及NPI总分与照料负担水平显著相关(P<0.05)。此外,在照料者的人格特质中,神经质和宜人性可预测照料者负担。未发现其他社会人口统计学因素和MMSE得分与照料者负担有显著关联。更好地了解照料者负担的指标有助于医生、政策制定者和心理健康管理人员为家庭照料者量身定制最合适的预防和补救干预措施。

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