Instituto de Neurología "Américo Ricaldoni", Facultad de Medicina, Universidad de la República, Uruguay.
Institute of Psychological Medicine & Clinical Neuroscience, Cardiff University, UK.
Epileptic Disord. 2020 Aug 1;22(4):364-380. doi: 10.1684/epd.2020.1190.
This review focusses on counselling to reduce the risks of seizures in epilepsy patients. Risk reduction, whilst maximising the independence of persons with epilepsy, is a core element of epilepsy practice. The importance of the issue is reflected by the inclusion of risk assessment and reduction in the recent International League Against Epilepsy Curriculum for epileptology. This article addresses the key elements of epilepsy risk and provides practical guidance for counselling and risk reduction. A review of key publications was performed focusing on: (1) the risk of injury associated with seizures; (2) safety issues related to seizures and lifestyle; (3) SUDEP risk and avoidance; and (4) assessing individual risks. Risk is common in epilepsy and is multifactorial. Clinicians should be aware of the risk factors associated with different epilepsy features, such as seizure type, as well as those related to lifestyle and common indoor and outdoor activities. In addition, transcultural differences should be considered in risk assessment and counselling, e.g. regarding SUDEP or even driving, for which regulations vary across nations. Assessment of individual risk is evolving through a better understanding of risk factors and methodologies which can improve communication and empower patients to help identify and manage their individual risks.
这篇综述专注于癫痫患者减少癫痫发作风险的咨询。风险降低,同时最大限度地提高癫痫患者的独立性,是癫痫实践的核心要素。该问题的重要性反映在最近的国际抗癫痫联盟癫痫课程中包括风险评估和降低。本文介绍了癫痫风险的关键要素,并为咨询和风险降低提供了实用指导。对关键出版物进行了回顾,重点关注:(1)癫痫发作相关伤害的风险;(2)与癫痫和生活方式相关的安全问题;(3)SUDEP 风险和预防;(4)评估个体风险。癫痫风险普遍存在,且具有多因素性。临床医生应了解与不同癫痫特征相关的风险因素,如发作类型,以及与生活方式和常见室内外活动相关的因素。此外,在风险评估和咨询中应考虑跨文化差异,例如 SUDEP 或驾驶风险,因为各国的规定不同。通过更好地了解风险因素和方法学,可以评估个体风险,这可以改善沟通并使患者能够帮助识别和管理其个体风险。