Verma Rahul, Mehdian Yasna, Sheth Neel, Netten Kathy, Vinette Jean, Edwards Ashley, Polyviou Joanna, Orkin Julia, Amin Reshma
Department of Paediatrics, Children's Hospital, London Health Sciences Centre, London, Ontario, Canada.
Western University, London, Ontario, Canada.
BMJ Paediatr Open. 2020 Jul 27;4(1):e000671. doi: 10.1136/bmjpo-2020-000671. eCollection 2020.
To quantify psychosocial risk in family caregivers of children with medical complexity using the Psychosocial Assessment Tool (PAT) and to investigate potential contributing sociodemographic factors.
Cross-sectional study.
Family caregivers completed questionnaires during long-term ventilation and complex care clinic visits at The Hospital for Sick Children, Toronto, Ontario, Canada.
A total of 136 family caregivers of children with medical complexity completed the PAT questionnaires from 30 June 2017 through 23 August 2017.
Mean PAT scores in family caregivers of children with medical complexity. Caregivers were stratified as 'Universal' low risk, 'Targeted' intermediate risk or 'Clinical' high risk. The effect of sociodemographic variables on overall PAT scores was also examined using multiple linear regression analysis. Comparisons with previous paediatric studies were made using T-test statistics.
136 (103 females (76%)) family caregivers completed the study. Mean PAT score was 1.17 (SD=0.74), indicative of 'Targeted' intermediate risk. Sixty-one (45%) caregivers were classified as Universal risk, 60 (44%) as Targeted risk and 15 (11%) as Clinical risk. Multiple linear regression analysis revealed an overall significant model (p=0.04); however, no particular sociodemographic factor was a significant predictor of total PAT scores.
Family caregivers of children with medical complexity report PAT scores among the highest of all previously studied paediatric populations. These caregivers experience significant psychosocial risk, demonstrated by larger proportions of caregivers in the highest-risk Clinical category.
使用社会心理评估工具（PAT）对患有复杂疾病儿童的家庭照顾者的社会心理风险进行量化，并调查潜在的社会人口学影响因素。
横断面研究。
加拿大安大略省多伦多市病童医院的家庭照顾者在长期通气和复杂护理门诊就诊期间完成问卷调查。
2017年6月30日至2017年8月23日，共有136名患有复杂疾病儿童的家庭照顾者完成了PAT问卷。
患有复杂疾病儿童的家庭照顾者的平均PAT得分。照顾者被分为“普遍”低风险、“有针对性”中度风险或“临床”高风险。还使用多元线性回归分析研究了社会人口学变量对总体PAT得分的影响。使用T检验统计量与先前的儿科研究进行比较。
136名（103名女性（76%））家庭照顾者完成了研究。平均PAT得分为1.17（标准差=0.74），表明为“有针对性”中度风险。61名（45%）照顾者被归类为普遍风险，60名（44%）为有针对性风险，15名（11%）为临床风险。多元线性回归分析显示总体模型具有显著性（p=0.04）；然而，没有特定的社会人口学因素是PAT总分的显著预测因素。
患有复杂疾病儿童的家庭照顾者报告的PAT得分在所有先前研究的儿科人群中是最高的。这些照顾者经历了显著的社会心理风险，高风险临床类别的照顾者比例更高证明了这一点。
