Rocque Brandon G, Cutillo Alexandra, Zimmerman Kathrin, Arynchyna Anastasia, Davies Susan, Landier Wendy, Madan-Swain Avi
1Division of Pediatrics, Department of Neurosurgery, University of Alabama at Birmingham.
2Department of Psychology, University of Alabama at Birmingham.
J Neurosurg Pediatr. 2019 Jan 1;23(1):40-47. doi: 10.3171/2018.7.PEDS18297. Epub 2018 Oct 12.
In BriefThe investigators administered surveys to parents whose children were hospitalized with a brain tumor. They learned that parents in this situation are highly distressed, and that families have multiple sources of stress when a child is hospitalized. The investigators used this information to improve the psychosocial supportive care provided at their hospital. In general, these findings have the potential to improve the patient's and family's experience with a new brain tumor by guiding teams to address family needs as well as the child's acute medical needs.
简而言之,研究人员对那些孩子因患脑瘤而住院的家长进行了调查。他们了解到处于这种情况的家长极度痛苦,而且当孩子住院时家庭会面临多种压力源。研究人员利用这些信息改善了他们医院提供的心理社会支持性护理。总体而言,这些发现有可能通过引导团队满足家庭需求以及孩子的急性医疗需求,来改善患者及其家庭面对新发脑瘤时的体验。