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Changes in self-reported distress in end-of-life pediatric cancer patients and their parents using the pediatric distress thermometer.使用儿童痛苦温度计评估临终期儿科癌症患者及其父母自我报告的痛苦变化。
Psychooncology. 2014 May;23(5):592-6. doi: 10.1002/pon.3469. Epub 2013 Dec 27.
2
Does the use of the revised psychosocial assessment tool (PATrev) result in improved quality of life and reduced psychosocial risk in Canadian families with a child newly diagnosed with cancer?修订后的心理社会评估工具(PATrev)的使用是否能改善加拿大新诊断出癌症的儿童家庭的生活质量并降低心理社会风险?
Psychooncology. 2014 Feb;23(2):165-72. doi: 10.1002/pon.3386. Epub 2013 Sep 4.
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Screening for psychosocial risk in pediatric cancer.儿科癌症的心理社会风险筛查。
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4
Psychosocial services in the first 30 days after diagnosis: results of a web-based survey of Children's Oncology Group (COG) member institutions.诊断后 30 天内的心理社会服务:一项针对儿童肿瘤学组(COG)成员机构的网络调查结果。
Pediatr Blood Cancer. 2012 Mar;58(3):435-40. doi: 10.1002/pbc.23235. Epub 2011 Jul 13.
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Association of psychosocial risk screening in pediatric cancer with psychosocial services provided.儿科癌症患者心理社会风险筛查与提供心理社会服务的关联。
Psychooncology. 2011 Jul;20(7):715-23. doi: 10.1002/pon.1972. Epub 2011 Apr 7.
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Measurement of psychological distress in patients with intracranial tumours: the NCCN distress thermometer.颅内肿瘤患者心理困扰的测量:NCCN 苦恼温度计。
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Distress screening, rater agreement, and services in pediatric oncology.儿科肿瘤学中的困扰筛查、评估者一致性和服务。
Psychooncology. 2011 Dec;20(12):1324-33. doi: 10.1002/pon.1859. Epub 2010 Oct 5.
8
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Family psychosocial risk, distress, and service utilization in pediatric cancer: predictive validity of the Psychosocial Assessment Tool.儿科癌症中的家庭心理社会风险、困扰及服务利用情况:心理社会评估工具的预测效度
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Evidence-based assessment, intervention and psychosocial care in pediatric oncology: a blueprint for comprehensive services across treatment.儿科肿瘤学中的循证评估、干预及心理社会护理:贯穿治疗全程的综合服务蓝图
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新诊断出患有小儿脑肿瘤的家庭中的困扰与心理社会风险。

Distress and psychosocial risk in families with newly diagnosed pediatric brain tumors.

作者信息

Rocque Brandon G, Cutillo Alexandra, Zimmerman Kathrin, Arynchyna Anastasia, Davies Susan, Landier Wendy, Madan-Swain Avi

机构信息

1Division of Pediatrics, Department of Neurosurgery, University of Alabama at Birmingham.

2Department of Psychology, University of Alabama at Birmingham.

出版信息

J Neurosurg Pediatr. 2019 Jan 1;23(1):40-47. doi: 10.3171/2018.7.PEDS18297. Epub 2018 Oct 12.

DOI:10.3171/2018.7.PEDS18297
PMID:30485209
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6944277/
Abstract

In BriefThe investigators administered surveys to parents whose children were hospitalized with a brain tumor. They learned that parents in this situation are highly distressed, and that families have multiple sources of stress when a child is hospitalized. The investigators used this information to improve the psychosocial supportive care provided at their hospital. In general, these findings have the potential to improve the patient's and family's experience with a new brain tumor by guiding teams to address family needs as well as the child's acute medical needs.

摘要

简而言之,研究人员对那些孩子因患脑瘤而住院的家长进行了调查。他们了解到处于这种情况的家长极度痛苦,而且当孩子住院时家庭会面临多种压力源。研究人员利用这些信息改善了他们医院提供的心理社会支持性护理。总体而言,这些发现有可能通过引导团队满足家庭需求以及孩子的急性医疗需求,来改善患者及其家庭面对新发脑瘤时的体验。