Graduate School of Health Sciences, Dokuz Eylül University, Izmir, Turkey.
Department of Physiotherapy and Rehabilitation, Faculty of Health Sciences, Izmir Katip Celebi University, Izmir, Turkey.
Ir J Med Sci. 2021 May;190(2):701-709. doi: 10.1007/s11845-020-02337-w. Epub 2020 Aug 13.
Caregiving demands contribute to both psychological and physical health of caregivers. Physical workload (PW) can be an important cause of musculoskeletal disorders in caregivers of children with cerebral palsy (CP).
To investigate PW during caregiving activities and related factors among caregivers of children with CP.
Children with CP (n = 291) and their caregivers (n = 291) were recruited for this cross-sectional study. Caregivers were categorized as their child has presence of intellectual disability (ID) and independent walking ability. Gross motor function was assessed using the Gross Motor Function Classification System (GMFCS) in children. PW; presence and distribution of musculoskeletal pain sites; levels of disability of neck, low back, arm, and leg; levels of depressive symptoms; and health-related quality of life (HRQOL) were assessed in caregivers.
Significant differences were observed in PW, low back pain-related disability, depressive symptoms, and HRQOL between caregivers of children with and without an ID (p < 0.05). All study variables were significantly different between caregivers of children who can and cannot independently walk (p < 0.05). PW was correlated with caregiver's age, body mass index, lower extremity dysfunction, depressive symptoms, and child's GMFCS level (p < 0.05).
Caregivers of a child having an ID and walking disability had higher PW. These caregivers had more problems related to musculoskeletal disorders, higher depressive symptoms, and lower HRQOL. Higher PW was associated with lower level of gross motor function of child and older age, higher body mass index, higher level of lower extremity disfunction and low back pain disability, and lower HRQOL of caregivers.
照顾需求会影响照顾者的心理和身体健康。体力工作量(PW)可能是脑瘫儿童照顾者肌肉骨骼疾病的重要原因。
调查脑瘫儿童照顾者的照顾活动中的体力工作量(PW)及其相关因素。
本横断面研究招募了 291 名脑瘫儿童及其照顾者。根据其孩子是否存在智力残疾(ID)和独立行走能力,将照顾者分为两组。儿童的粗大运动功能使用粗大运动功能分类系统(GMFCS)进行评估。评估照顾者的 PW;肌肉骨骼疼痛部位的存在和分布;颈部、下背部、手臂和腿部的残疾程度;抑郁症状水平;以及健康相关生活质量(HRQOL)。
存在 ID 和独立行走能力的脑瘫儿童的照顾者之间在 PW、下腰痛相关残疾、抑郁症状和 HRQOL 方面存在显著差异(p < 0.05)。能够和不能独立行走的儿童的照顾者之间的所有研究变量都有显著差异(p < 0.05)。PW 与照顾者的年龄、体重指数、下肢功能障碍、抑郁症状和孩子的 GMFCS 水平相关(p < 0.05)。
有 ID 和行走障碍的孩子的照顾者 PW 更高。这些照顾者在肌肉骨骼疾病方面存在更多问题,抑郁症状更严重,生活质量更低。更高的 PW 与儿童的粗大运动功能水平较低、年龄较大、体重指数较高、下肢功能障碍和下腰痛残疾程度较高以及照顾者的 HRQOL 较低有关。