Nursing School, Chongqing Medical University, Chongqing, Chongqing, China.
Department of Nursing, Children's Hospital of ChongqingMedical University, Chongqing, China.
BMJ Open. 2023 Apr 3;13(4):e065215. doi: 10.1136/bmjopen-2022-065215.
To identify caregiver and children factors associated with caregiver burden on primary caregivers of children with cerebral palsy (CP).
Systematic review DATA SOURCES: Seven electronic databases, including PubMed, Cochrane Library, Scopus, PsycINFO, Web of Science, CINAHL and Embase, were systematically searched up to 1 February 2023.
Original observational studies reporting caregiver burden and related factors among caregivers of children with CP.
Two reviewers independently screened results and assessed the quality of studies. Title, abstract, full-text screening and data abstraction were done independently by two reviewers. Risk of bias was assessed using the JBI Critical Appraisal Checklist for Analytical Cross-Sectional Studies. The quality of evidence for factors was rated using the Grading of Recommendations Assessment, Development and Evaluation (GRADE) approach.
16 articles were included in the review. All studies were cross-sectional and examined caregiver-reported burden measures. The Zarit Burden Interview was the most commonly used questionnaire. Depression of caregiver and severity of illness in children with CP were moderate quality of evidence for factors contributing to caregiver burden.
Higher caregiver burden is associated with more depressive feelings and worse life quality of the caregiver, and with more severe physical disability of the children. Future studies should focus on high-quality longitudinal research and appropriate assistance to reduce caregiver burden and improve the quality of caregiving for children with CP.
CRD42021268284.
确定与脑瘫（CP）患儿照顾者负担相关的照顾者和儿童因素。
系统评价
截至 2023 年 2 月 1 日，系统检索了 7 个电子数据库，包括 PubMed、Cochrane 图书馆、Scopus、PsycINFO、Web of Science、CINAHL 和 Embase。
报告脑瘫患儿照顾者负担及其相关因素的原始观察性研究。
两名审查员独立筛选结果并评估研究质量。标题、摘要、全文筛选和数据提取均由两名审查员独立完成。使用 JBI 分析性横断面研究批判性评估清单评估偏倚风险。使用推荐评估、制定和评估（GRADE）方法评估因素的证据质量。
综述纳入了 16 篇文章。所有研究均为横断面研究，检查了照顾者报告的负担测量。Zarit 负担访谈是最常用的问卷。照顾者抑郁和 CP 患儿疾病严重程度是导致照顾者负担的因素，具有中等质量的证据。
照顾者负担较高与照顾者更抑郁的感觉和更差的生活质量以及患儿更严重的身体残疾有关。未来的研究应侧重于高质量的纵向研究和适当的帮助，以减轻照顾者的负担，提高脑瘫患儿的护理质量。
PROSPERO 注册号：CRD42021268284。
