South Australian Health and Medical Research Institute, North Terrace, Adelaide, SA, 5000, Australia.
Flinders University, Sturt Rd, Bedford Park, Adelaide, SA, 5042, Australia.
BMC Health Serv Res. 2020 Aug 20;20(1):769. doi: 10.1186/s12913-020-05388-y.
Sexually transmissible infection (STI) and blood-borne virus (BBV) diagnoses data are a core component of the Australian National Notifiable Diseases Surveillance System (NNDSS). However, the NNDSS data alone is not enough to understand STI and BBV burden among priority population groups, like Aboriginal and Torres Strait Islander people, because it lacks testing, treatment and management data. Here, we describe the processes involved in establishing a STI and BBV sentinel surveillance network representative of Aboriginal Community-Controlled Health Services (ACCHS)-known as the ATLAS network-to augment the NNDSS and to help us understand the burden of disease due to STI and BBV among Aboriginal and Torres Strait Islander peoples.
Researchers invited participation from ACCHS in urban, regional and remote areas clustered in five clinical hubs across four Australian jurisdictions. Participation agreements were developed for each clinical hub and individual ACCHS. Deidentified electronic medical record (EMR) data relating to STI and BBV testing, treatment and management are collected passively from each ACCHS via the GRHANITE data extraction tool. These data are analysed centrally to inform 12 performance measures which are included in regular surveillance reports generated for each ACCHS and clinical hub.
The ATLAS network currently includes 29 ACCHS. Regular reports are provided to ACCHS to assess clinical practice and drive continuous quality improvement initiatives internally. Data is also aggregated at the hub, jurisdictional and national level and will be used to inform clinical guidelines and to guide future research questions. The ATLAS infrastructure can be expanded to include other health services and potentially linked to other data sources using GRHANITE.
The ATLAS network is an established national surveillance network specific to Aboriginal and Torres Strait Islander peoples. The data collected through the ATLAS network augments the NNDSS and will contribute to improved STI and BBV clinical care, guidelines and policy program-planning.
性传播感染(STI)和血源病毒(BBV)诊断数据是澳大利亚国家传染病监测系统(NNDSS)的核心组成部分。然而,仅 NNDSS 数据不足以了解包括原住民和托雷斯海峡岛民在内的优先人群群体的 STI 和 BBV 负担,因为它缺乏检测、治疗和管理数据。在这里,我们描述了建立 STI 和 BBV 哨点监测网络的过程,该网络代表原住民社区控制的健康服务(ACCHS),称为 ATLAS 网络,以补充 NNDSS,并帮助我们了解原住民和托雷斯海峡岛民中 STI 和 BBV 疾病负担。
研究人员邀请来自城市、地区和偏远地区的 ACCHS 参加,这些地区集中在澳大利亚四个司法管辖区的五个临床中心。为每个临床中心和单个 ACCHS 制定了参与协议。通过 GRHANITE 数据提取工具,从每个 ACCHS 被动收集与 STI 和 BBV 检测、治疗和管理相关的匿名电子病历(EMR)数据。这些数据在中央进行分析,为每个 ACCHS 和临床中心生成的常规监测报告提供 12 项绩效指标。
ATLAS 网络目前包括 29 个 ACCHS。定期向 ACCHS 提供报告,以评估临床实践并推动内部持续质量改进举措。数据还在中心、司法管辖区和国家层面进行汇总,并将用于为临床指南提供信息,并指导未来的研究问题。ATLAS 基础设施可以扩展到包括其他卫生服务,并通过 GRHANITE 与其他数据源链接。
ATLAS 网络是一个针对原住民和托雷斯海峡岛民的既定国家监测网络。通过 ATLAS 网络收集的数据补充了 NNDSS,并将有助于改善 STI 和 BBV 的临床护理、指南和政策规划。