Department of Nursing, Chang Gung University of Science and Technology, Chiayi, Taiwan.
Chiayi Chang Gung Memorial Hospital, Chiayi, Taiwan.
Asian Nurs Res (Korean Soc Nurs Sci). 2020 Oct;14(4):231-240. doi: 10.1016/j.anr.2020.08.005. Epub 2020 Aug 21.
This study sought to understand Taiwanese women's decisional experiences regarding prenatal screening procedures and diagnostics.
A hermeneutic phenomenological design guided semistructured interviews with 33 women who were 36 weeks pregnant. Data were collected between February and October 2016. Verbatim transcripts were analyzed following hermeneutic circle to cocreate an understanding of Taiwanese women's decision-making in prenatal screening and diagnostics.
Women's existential experiences were derived from their decision-making process on prenatal screening procedures and diagnostics for chromosomal aneuploidy. These decisional experiences were captured by four theme clusters and eight themes, which were inductively derived from 16 meaning units: (1) accessing health information; (2) considering what was best for my baby; (3) considering family finance; and (4) feeling anxiety posttest.
Participants made informed choices on several prenatal screening procedures, ostensibly, based on their personal values and considerations. During the decision-making process, often-cited benefits of genetic screenings were emphasized, but test limitations were often unheeded. A fundamental need for supportive information in decision making was further identified with recommended strategies. Hence, a revision of traditional genetic counseling approaches is recommended. As genomics technologies are increasingly available during antenatal services, women should be sufficiently educated about them to support decision making.
本研究旨在了解台湾女性在产前筛查程序和诊断方面的决策经验。
采用解释学现象学设计,对 33 名怀孕 36 周的女性进行半结构式访谈。数据收集于 2016 年 2 月至 10 月。采用解释学循环对逐字记录进行分析,以共同理解台湾女性在产前筛查和诊断中的决策。
女性的存在经验源于她们在染色体非整倍体产前筛查程序和诊断方面的决策过程。这些决策经验由四个主题群和八个主题组成,这些主题是从 16 个意义单位归纳得出的:(1)获取健康信息;(2)考虑对宝宝最有利的因素;(3)考虑家庭财务状况;(4)测试后感到焦虑。
参与者根据个人价值观和考虑因素,对几种产前筛查程序做出了明智的选择。在决策过程中,经常提到基因筛查的好处,但往往忽略了测试的局限性。进一步确定了决策过程中对支持性信息的基本需求,并提出了建议策略。因此,建议修订传统的遗传咨询方法。随着基因组学技术在产前服务中越来越普及,应充分教育女性相关知识,以支持其决策。