Åhman Annika, Sarkadi Anna, Lindgren Peter, Rubertsson Christine
Department of Women's and Children's Health, Uppsala University, Box 609, Uppsala, 751 25, Sweden.
BMC Pregnancy Childbirth. 2016 Sep 13;16(1):267. doi: 10.1186/s12884-016-1057-y.
Enabling women to make informed decisions is a key objective in the guidelines governing prenatal screening and diagnostics. Despite efforts to provide information, research shows that women's choice of prenatal screening is often not based on informed decisions. The aim of this study was to investigate pregnant women's perceptions of the use of an interactive web-based DA, developed to initiate a process of reflection and deliberate decision-making concerning screening and testing for fetal anomalies.
A qualitative study was applied and individual interviews were conducted. Seventeen pregnant women attending antenatal healthcare in Uppsala County, Sweden, who had access to the decision aid were interviewed. Eleven opted to use the decision aid and six did not. Data were analysed by systematic text condensation.
Women appreciated the decision aid, as it was easily accessible; moreover, they emphasised the importance of a reliable source. It helped them to clarify their own standpoints and engaged their partner in the decision-making process. Women described the decision aid as enhancing their awareness that participating in prenatal screening and diagnostics was a conscious choice. Those who chose not to use the web-based decision aid when offered reported that they already had sufficient knowledge.
The decision aid was able to initiate a process of deliberate decision-making in pregnant women as a result of their interaction with the tool. Access to a web-based decision aid tool can be valuable to expectant parents in making quality decisions regarding screening for fetal anomalies.
使女性能够做出明智的决定是产前筛查和诊断指南的一个关键目标。尽管已努力提供信息，但研究表明，女性对产前筛查的选择往往并非基于明智的决定。本研究的目的是调查孕妇对使用基于网络的交互式决策辅助工具的看法，该工具旨在启动一个关于胎儿异常筛查和检测的反思及审慎决策过程。
采用定性研究方法并进行个人访谈。对瑞典乌普萨拉郡接受产前保健且能够使用该决策辅助工具的17名孕妇进行了访谈。其中11人选择使用该决策辅助工具，6人未选择使用。通过系统的文本浓缩对数据进行分析。
女性对该决策辅助工具表示赞赏，因为它易于获取；此外，她们强调了可靠信息来源的重要性。它帮助她们阐明自己的立场，并使伴侣参与到决策过程中。女性称该决策辅助工具增强了她们的认识，即参与产前筛查和诊断是一种有意识的选择。那些在有机会时选择不使用基于网络的决策辅助工具的人表示，她们已经有足够的知识。
由于孕妇与该工具的互动，该决策辅助工具能够启动孕妇的审慎决策过程。对于准父母来说，能够使用基于网络的决策辅助工具在做出关于胎儿异常筛查的高质量决策方面可能很有价值。
