Aza Alba, Verdugo Miguel Ángel, Orgaz María Begoña, Andelic Nada, Fernández María, Forslund Marit Vindal
Faculty of Psychology, University of Salamanca, Salamanca, Spain.
Institute on Community Integration (INICO), University of Salamanca, Salamanca, Spain.
Disabil Rehabil. 2022 Apr;44(8):1333-1345. doi: 10.1080/09638288.2020.1803426. Epub 2020 Aug 26.
Acquired brain injury (ABI) diminishes quality of life (QoL) of affected individuals and their families. Fortunately, new multidimensional instruments such as the (CAVIDACE) scale are available. However, differences in self- and proxy-reported QoL remain unclear. Therefore, this study examined these differences and identified predictors of QoL among individuals with ABI.
This cross-sectional study comprised 393 adults with ABI (men: 60%; 54.65, 14.51). Self-, family-, and professional-reported QoL were assessed using the CAVIDACE scale. Other personal and social variables were assessed as predictors of QoL.
Professionals had the lowest QoL scores ( = 1.88, = 0.45), followed by family members ( = 2.02, = 0.44) and individuals with ABI ( = 2.10, = 0.43). Significant differences were found for almost all QoL domains, finding the highest correlations between family and professional proxy measures ( = 0.63). Hierarchical regression analysis revealed that sociodemographic, clinical, rehabilitation, personal, and social variables were significant predictors of QoL.
It is necessary to use both self- and proxy-report measures of QoL. Additionally, the identification of the variables that impact QoL permits us to modify the interventions that are offered to these individuals accordingly.Implications for rehabilitationAcquired brain injury (ABI) causes significant levels of disability and affects several domains of functioning, which in turn can adversely affect quality of life (QoL).QoL is a multidimensional construct that is affected by numerous factors: sociodemographic, clinical, personal, social, etc; and also, with aspects related to the rehabilitation they receive after ABI.Rehabilitation programs should address the different domains of functioning that have been affected by ABI.Based on research findings about the QoL's predictors, modifications could be made in the rehabilitation process; paying special attention to the depressive- and anosognosia process, as well as the importance of promoting social support, community integration, and resilience.
获得性脑损伤（ABI）会降低受影响个体及其家庭的生活质量（QoL）。幸运的是，现在有了新的多维工具，如（CAVIDACE）量表。然而，自我报告和他人代报告的生活质量差异仍不明确。因此，本研究调查了这些差异，并确定了ABI个体生活质量的预测因素。
这项横断面研究纳入了393名患有ABI的成年人（男性：60%；年龄54.65岁，标准差14.51岁）。使用CAVIDACE量表评估自我、家庭和专业人员报告的生活质量。评估其他个人和社会变量作为生活质量的预测因素。
专业人员的生活质量得分最低（均值=1.88，标准差=0.45），其次是家庭成员（均值=2.02，标准差=0.44）和患有ABI的个体（均值=2.10，标准差=0.43）。几乎所有生活质量领域都存在显著差异，发现家庭和专业人员代报告测量之间的相关性最高（r= 0.63）。分层回归分析显示，社会人口统计学、临床、康复、个人和社会变量是生活质量的显著预测因素。
有必要同时使用生活质量的自我报告和他人代报告测量方法。此外，确定影响生活质量的变量使我们能够相应地调整为这些个体提供的干预措施。对康复的启示获得性脑损伤（ABI）会导致严重的残疾水平，并影响多个功能领域，进而可能对生活质量（QoL）产生不利影响。生活质量是一个多维结构，受到众多因素的影响：社会人口统计学、临床、个人、社会等；此外，还与ABI后接受的康复方面有关。康复计划应解决受ABI影响的不同功能领域。根据关于生活质量预测因素的研究结果，可以在康复过程中进行调整；特别关注抑郁和疾病感缺失过程，以及促进社会支持、社区融入和恢复力的重要性。
