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一种新的用于测量后天性脑损伤患者生活质量的量表。

A new scale for measuring quality of life in acquired brain injury.

机构信息

Faculty of Psychology, University of Salamanca, Avda. de la Merced, 109-131, 37005, Salamanca, Spain.

Institute on Community Integration (INICO), University of Salamanca, Salamanca, Spain.

出版信息

Qual Life Res. 2019 Mar;28(3):801-814. doi: 10.1007/s11136-018-2047-5. Epub 2018 Nov 17.

DOI:10.1007/s11136-018-2047-5
PMID:30448910
Abstract

PURPOSE

A common and frequent consequence of an acquired brain injury (ABI) is the diminished quality of life (QoL) of affected people. Because the majority of existing QoL instruments assess health-related domains, new instruments that allow for the evaluation of the QoL from an integral perspective that considers the context and personal factors of the individual are warranted. Hence, the purpose of this study is to develop and validate an instrument with these characteristics.

METHODS

The CAVIDACE scale is a new 64-item specific instrument to assess QoL in people with ABI based on a third-person perspective. The validation sample comprises 421 adults with ABI, with ages ranging from 17 to 90 years (M = 53.12; SD = 14.87). The scale was completed by 97 professionals and 58 family members. Validity evidence based on the internal structure of the scale was provided through confirmatory factor analyses. Reliability was analyzed in terms of internal consistency and inter-rater reliability.

RESULTS

The results supported the internal structure of the scale, based on the theoretical and assessment framework in which QoL is composed of eight intercorrelated first-order domains (CFI = 0.890, RMSEA = 0.065, SRMR = 0.071). The internal consistency was good or excellent for the eight domains (ordinal alpha ranging from 0.77 to 0.93). The inter-rater reliability was very high (0.97).

CONCLUSIONS

The CAVIDACE scale is found to be a specific instrument with excellent psychometric properties that is helpful for the assessment of QoL in people with ABI, both in clinical practice and for research purposes.

摘要

目的

获得性脑损伤(ABI)的一个常见且频繁的后果是受影响人群的生活质量(QoL)下降。由于大多数现有的 QoL 工具评估与健康相关的领域,因此需要新的工具来从整体角度评估 QoL,同时考虑个体的背景和个人因素。因此,本研究的目的是开发和验证具有这些特征的工具。

方法

CAVIDACE 量表是一种新的 64 项特定工具,用于基于第三人称视角评估 ABI 患者的 QoL。验证样本包括 421 名年龄在 17 至 90 岁之间(M=53.12;SD=14.87)的 ABI 成年人。该量表由 97 名专业人员和 58 名家庭成员完成。基于量表的内部结构,通过验证性因素分析提供了有效性证据。内部一致性和评分者间信度分析用于评估可靠性。

结果

结果支持了量表的内部结构,这基于 QoL 由八个相互关联的一阶领域组成的理论和评估框架(CFI=0.890,RMSEA=0.065,SRMR=0.071)。八个领域的内部一致性良好或优秀(有序 alpha 范围为 0.77 至 0.93)。评分者间信度非常高(0.97)。

结论

CAVIDACE 量表是一种具有良好心理测量特性的特定工具,有助于评估 ABI 患者的 QoL,无论是在临床实践中还是在研究目的中。

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