Department of Physical Medicine and Rehabilitation, La Paz University Hospital-IdiPaz , Madrid, Spain.
Department of Hematology, La Paz University Hospital-IdiPaz , Madrid, Spain.
Expert Rev Hematol. 2020 Oct;13(10):1073-1079. doi: 10.1080/17474086.2020.1818066. Epub 2020 Sep 17.
The coronavirus disease 2019 (COVID-19) pandemic represents an unprecedented global health crisis. To combat its effects, many governments have opted for strategies of social isolation that involve a radical change in people's behavior.
For patients with hemophilia, the negative consequences of these measures can be greater, given they modify aspects of health care and lifestyles needed to counteract the adverse effects of hemophilia. The long-term consequences of the pandemic on patients with hemophilia are not well known. The aim of this special report is to show what COVID-19 could mean for this population, beyond the risk of infection.
Considerations of the clinical, care, therapeutic, physical, nutritional, mental health, pain, and disability aspects that might be affected are included. Strategies are also suggested to minimize the effects that these issues can have on patients' lives. Patients, health professionals, and society as a whole must work together to mitigate the effects of the pandemic on people with hemophilia.
2019 年冠状病毒病（COVID-19）大流行是一场史无前例的全球卫生危机。为了应对其影响，许多政府选择了社会隔离策略，这涉及到人们行为的根本改变。
对于血友病患者来说，这些措施的负面影响可能更大，因为它们改变了对抗血友病负面影响所需的医疗保健和生活方式的各个方面。大流行对血友病患者的长期影响尚不清楚。本特别报告的目的是展示 COVID-19 对这一人群意味着什么，而不仅仅是感染的风险。
考虑了可能受到影响的临床、护理、治疗、身体、营养、心理健康、疼痛和残疾等方面，并提出了一些策略来尽量减少这些问题对患者生活的影响。患者、卫生专业人员和整个社会必须共同努力，减轻 COVID-19 对血友病患者的影响。
