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后天性脑损伤(ABI)后的兄弟姐妹关系:ABI 患者和未受伤的兄弟姐妹的观点。

The sibling relationship after acquired brain injury (ABI): perspectives of siblings with ABI and uninjured siblings.

机构信息

Monash-Epworth Rehabilitation Research Centre, Monash University , Melbourne, Australia.

Turner Institute for Brain and Mental Health, Brain Injury and Rehabilitation Program, School of Psychological Sciences, Monash University , Melbourne, Australia.

出版信息

Brain Inj. 2020 Sep 18;34(11):1504-1512. doi: 10.1080/02699052.2020.1809708. Epub 2020 Aug 31.

DOI:10.1080/02699052.2020.1809708
PMID:32866049
Abstract

Primary Objective This study explored the sibling relationship across the lifespan after acquired brain injury (ABI). Research Design A qualitative approach was used to explore the perspectives of siblings with ABI and uninjured siblings. Methods and Procedures Semi-structured interviews with 19 siblings with ABI and 20 uninjured siblings (aged 6-61 years) were analyzed using reflexive thematic analysis.  Main Outcomes and Results Four themes were identified: Living with ABI; Being normal siblings; Being part of a family; Experiencing social stigma of ABI. ABI was a traumatic event which differentiated siblings but increased understanding helped accommodate its impact. This impact was experienced within perceptions of typical sibling relationships as involving closeness and conflict. The family context shaped relationships, with parents mediating across the lifespan, while siblings' partners and children contributed to adult sibling relationships. Finally, social stigma led to distance but also protectiveness between siblings. Conclusions The sibling relationship was experienced as a continually evolving source of closeness and conflict within the family context. ABI enhanced preexisting dynamics and created new dynamics, shaped by social attitudes toward ABI. Increased understanding of ABI supported closer relationships, highlighting a need for psychoeducational interventions across the lifespan.

摘要

主要目标 本研究探讨了后天性脑损伤(ABI)后整个生命周期中的兄弟姐妹关系。 研究设计 采用定性方法探讨了有 ABI 和未受伤的兄弟姐妹的观点。 方法和程序 对 19 名有 ABI 的兄弟姐妹和 20 名未受伤的兄弟姐妹(年龄 6-61 岁)进行了半结构化访谈,使用反思性主题分析进行了分析。 主要结果和结论 ABI 是一个创伤性事件,使兄弟姐妹产生了分歧,但增加的理解有助于适应其影响。这种影响是在涉及亲密和冲突的典型兄弟姐妹关系的认知中感受到的。家庭环境塑造了关系,父母在整个生命周期中进行调解,而兄弟姐妹的伴侣和孩子则为成年兄弟姐妹关系做出了贡献。最后,社会污名将兄弟姐妹之间的距离拉开,但也保护了他们。 结论 兄弟姐妹关系是家庭环境中亲密和冲突的不断发展的源泉。ABI 增强了先前存在的动态,并创造了新的动态,这些动态受社会对 ABI 的态度影响。对 ABI 的理解增加有助于建立更密切的关系,突出了在整个生命周期中进行心理教育干预的必要性。

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