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澳大利亚家长和兄弟姐妹对儿童获得性脑损伤对家庭关系的影响的看法,发生在受伤后最初的 6 周内。

Australian parent and sibling perspectives on the impact of paediatric acquired brain injury on family relationships during the first 6 weeks at home.

机构信息

The Royal Children's Hospital, Melbourne, Victoria, Australia.

Department of Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia.

出版信息

Health Soc Care Community. 2022 Nov;30(6):e5204-e5212. doi: 10.1111/hsc.13938. Epub 2022 Jul 26.

DOI:10.1111/hsc.13938
PMID:35880586
Abstract

This study explores the impact of paediatric acquired brain injury (ABI) on family relationships. Twenty-three families (n = 18 mothers, n = 7 fathers, and n = 4 siblings) of children who sustained an ABI requiring treatment from inpatient acute and rehabilitation services reported on their perceptions regarding changes in family relationships since the injured child's return home. Thematic analysis of survey data was conducted. Family members (parents and siblings) described four themes: (1) negative changes in sibling interactions; (2) role changes arising from an increase in parental expectations of non-injured siblings; (3) family system challenges in balancing needs within the parent-child dyad and sibling subsystems; and (4) supporting emotional responses within the family system. Findings reveal a critical time for families as they resume full care of the injured child at home. Clinical implications for social workers and other rehabilitation clinicians are explored.

摘要

本研究探讨了儿科获得性脑损伤(ABI)对家庭关系的影响。23 个家庭(n=18 位母亲,n=7 位父亲,n=4 位兄弟姐妹)的孩子因 ABI 而需要住院接受急性和康复治疗,报告了他们对受伤孩子回家后家庭关系变化的看法。对调查数据进行了主题分析。家庭成员(父母和兄弟姐妹)描述了四个主题:(1)兄弟姐妹互动的负面变化;(2)由于父母对未受伤兄弟姐妹的期望增加而导致的角色变化;(3)在父母-子女对子系统和兄弟姐妹子系统中平衡需求方面的家庭系统挑战;(4)在家庭系统中支持情绪反应。研究结果揭示了一个关键时期,因为家庭要在家中恢复对受伤孩子的全面照顾。探讨了社会工作者和其他康复临床医生的临床意义。

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