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斑秃患者心理状态的治疗意义:一项定性研究。

Therapeutic implications of psychological state in patients with alopecia areata: A qualitative study.

机构信息

Mykolas Romeris University, Institute of Psychology, Vilnius, Lithuania.

Vilnius University, Faculty of Organizational and Clinical Psychology, Vilnius, Lithuania.

出版信息

Dermatol Ther. 2020 Nov;33(6):e14269. doi: 10.1111/dth.14269. Epub 2020 Sep 15.

DOI:10.1111/dth.14269
PMID:32882084
Abstract

Hair loss can significantly impact an individual's psychological state, self-image, and can lead to numerous personal, social, and occupational problems. Although these impairments are well documented in primary studies and reviews, and the need for appropriate psychological help is emphasized, there is still a lack of knowledge for a broader and specific picture. The patient's perspective is vital while seeking to understand the content of the variables like "impaired body image" or "low self-esteem." This article advocates the need for studies involving methodologies allowing to explore the complexity and depth of experience. A better understanding of patients' states, reactions, and needs might contribute to the practice of healthcare professionals seeking the best possible help. This study aimed to explore the lived experience of people with alopecia areata in Lithuania using a phenomenological approach. Experiences of six patients with varying degrees of alopecia areata, four women and two men (mean age 27 years), were explored. Data were obtained using an unstructured interview and were analyzed based on Colaizzi's phenomenological approach. This article explores findings related to patient's psychological state covering two superordinate themes: (a) devastating loss of perceived self and (b) grieving and the process of acceptance. The insights for the appropriate therapeutic intervention were formulated.

摘要

脱发会严重影响个体的心理状态和自我形象,并可能导致个人、社交和职业等诸多问题。尽管这些损伤在主要研究和综述中已有详细记录,并且强调了对适当心理帮助的需求,但对于更广泛和具体的情况,人们仍然缺乏了解。在寻求理解“身体形象受损”或“自尊心低”等变量的内容时,患者的观点至关重要。本文主张需要进行涉及允许探索体验复杂性和深度的方法的研究。更好地了解患者的状态、反应和需求,可能有助于寻求最佳帮助的医疗保健专业人员的实践。本研究旨在使用现象学方法探索立陶宛斑秃患者的生活体验。研究了六位不同程度斑秃的患者的经历,其中包括四位女性和两位男性(平均年龄 27 岁)。使用非结构化访谈获得数据,并根据科拉齐的现象学方法进行分析。本文探讨了与患者心理状态相关的发现,涵盖两个超主题:(a) 自我感知的毁灭性丧失,以及 (b) 悲伤和接受过程。为适当的治疗干预制定了见解。

相似文献

1
Therapeutic implications of psychological state in patients with alopecia areata: A qualitative study.斑秃患者心理状态的治疗意义:一项定性研究。
Dermatol Ther. 2020 Nov;33(6):e14269. doi: 10.1111/dth.14269. Epub 2020 Sep 15.
2
Trichotillomania: Bizzare Patern of Hair Loss at 11-Year-old Girl.拔毛癖:一名11岁女孩的怪异脱发模式。
Acta Dermatovenerol Croat. 2016 Jun;24(2):150-3.
3
The lived experience of alopecia areata: a qualitative study.斑秃的生活体验:一项定性研究。
Body Image. 2009 Jun;6(3):194-200. doi: 10.1016/j.bodyim.2009.03.004. Epub 2009 May 5.
4
Psychosocial stress and coping in alopecia areata: a questionnaire survey and qualitative study among 45 patients.斑秃患者的心理社会压力和应对方式:一项针对 45 名患者的问卷调查和定性研究。
Acta Derm Venereol. 2011 May;91(3):318-27. doi: 10.2340/00015555-1031.
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Hierarchy of hair loss stigma: media portrayals of cancer, alopecia areata, and cancer in Israeli newspapers.脱发耻辱的等级:以色列报纸对癌症、斑秃和癌症的媒体描述。
Isr J Health Policy Res. 2019 Sep 3;8(1):68. doi: 10.1186/s13584-019-0338-0.
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Management of autoimmune associated alopecia areata.自身免疫性斑秃的管理
Nurs Stand. 2010;24(36):42-6. doi: 10.7748/ns2010.05.24.36.42.c7771.
7
[Alopecia areata: diagnostic and therapeutic approach].斑秃:诊断与治疗方法
Rev Med Brux. 1997 Dec;18(6):389-93.
8
Living with alopecia areata: an online qualitative survey study.患有斑秃:一项在线定性调查研究。
Br J Dermatol. 2019 Jun;180(6):1377-1389. doi: 10.1111/bjd.17463. Epub 2019 Feb 21.
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Out-of-Pocket Costs in Alopecia Areata: A Cross-Sectional Study in German-speaking Countries.斑秃患者的自付费用:德语国家的横断面研究。
Acta Derm Venereol. 2023 Jan 4;103:adv00838. doi: 10.2340/actadv.v103.4441.
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Experiences and coping behaviours of adolescents in Pakistan with alopecia areata: an interpretative phenomenological analysis.巴基斯坦斑秃青少年的经历和应对行为:阐释现象学分析。
Int J Qual Stud Health Well-being. 2015 Jan 29;10:26039. doi: 10.3402/qhw.v10.26039. eCollection 2015.

引用本文的文献

1
The psychosocial impact of alopecia in men: A mixed-methods survey study.男性脱发的社会心理影响:一项混合方法的调查研究。
Skin Health Dis. 2024 Jun 29;4(5):e420. doi: 10.1002/ski2.420. eCollection 2024 Oct.
2
"Hair is your crown and glory" - Black women's experiences of living with alopecia and the role of social support.“头发是你的王冠与荣耀”——黑人女性斑秃患者的生活经历及社会支持的作用
Health Psychol Rep. 2024 Jan 26;12(2):154-165. doi: 10.5114/hpr/177730. eCollection 2024.