Institute of Applied Psychology, University of the Punjab, Lahore, Punjab, Pakistan;
Division of Psychiatry and Applied Psychology, School of Medicine, University of Nottingham, Nottingham, UK.
Int J Qual Stud Health Well-being. 2015 Jan 29;10:26039. doi: 10.3402/qhw.v10.26039. eCollection 2015.
The study explored experiences of adolescents aged 15-19 with alopecia areata (AA) and investigated their accounts of coping behaviours. Interpretative Phenomenological Analysis was used to provide an in-depth and holistic perspective of their accounts. Semi-structured interviews were undertaken with a volunteer sample of eight respondents diagnosed with AA. Four key themes were identified: loss (self/social), concerns (physical/future), negative (emotions/thoughts), and coping styles (adaptive/maladaptive). Females experienced greater feelings of loss, were more concerned about their looks and their future, and reported more negative thoughts and emotions. Females felt angry and blamed God for their fate; males blamed both their fate and luck. Action-oriented and practical coping styles were adopted by all of them. After the realization that initial coping behaviours were ineffective, self-distraction, acceptance, and humour were used. Psychological relief followed with the practice of religion and planning for treatments to be undertaken in the future. The findings here are similar to research conducted in the West, though with more emphasis on religion. Health care providers and student counsellors need to understand the negative psychosocial consequences for adolescents living with a visible disfigurement and provide appropriate psychological and social support.
本研究探讨了 15-19 岁患有斑秃(AA)的青少年的经历,并调查了他们应对行为的描述。采用解释现象学分析(IPA)对他们的描述进行深入和全面的分析。对 8 名确诊为 AA 的志愿者进行了半结构式访谈。确定了四个关键主题:丧失(自我/社会)、担忧(身体/未来)、负面(情绪/想法)和应对方式(适应性/适应性不良)。女性经历了更大的失落感,对自己的外表和未来更担心,报告了更多的负面想法和情绪。女性感到愤怒,并将自己的命运归咎于上帝;男性则将自己的命运和运气归咎于自己。他们都采取了行动导向和实用的应对方式。在意识到最初的应对行为无效后,他们采用了自我转移、接受和幽默的方式。随着宗教的实践和未来治疗计划的实施,他们获得了心理上的解脱。这些发现与西方的研究相似,但更强调宗教。医疗保健提供者和学生辅导员需要了解患有可见毁容的青少年所面临的负面心理社会后果,并提供适当的心理和社会支持。