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“超越颠簸”——Reddit 上产后女性盆腔器官脱垂体验的洞察。

"Beyond the Bump" - Insight Into the Postpartum Women's Experience of Pelvic Organ Prolapse as Expressed on Reddit.

机构信息

Department of Urology, Stony Brook Medicine, Stony Brook, NY.

Section of Urology and Renal Transplantation, Virginia Mason Medical Center, Seattle, WA.

出版信息

Urology. 2021 Apr;150:99-102. doi: 10.1016/j.urology.2020.08.026. Epub 2020 Sep 1.

DOI:10.1016/j.urology.2020.08.026
PMID:32882301
Abstract

OBJECTIVE

To qualitatively analyze the biopsychological experiences of postpartum women regarding pelvic organ prolapse (POP) as expressed on Reddit, a widely used internet platform for anonymous discussion and information sharing. POP is a prevalent condition in postpartum women, yet personal experiences are often not discussed due to social stigma.

METHODS

"Beyondthebump," a Subreddit forum for postpartum mothers with >57,000 subscribers, was queried for "prolapse" to collect postings on POP in August 2018. Posts were analyzed qualitatively by 2 independent researchers. The principles of grounded theory were applied and preliminary themes were generated. These themes were used to derive emergent concepts.

RESULTS

We analyzed 28 unique posts with 390 responses from 2014 to 2018. Qualitative analysis yielded 3 preliminary themes. (1) Women were unaware POP could occur postpartum and frustrated by the lack of prenatal discussion. (2) Women expressed a need for supportive, comprehensive, and immediate care. (3) Attributed symptoms of POP included pain and discomfort, causing difficulty with daily life. Three emergent concepts were derived. (1) POP is a difficult, debilitating condition with mental and physical effects. (2) Women with POP were self-driven and actively sought help. (3) There was motivation to increase POP awareness.

CONCLUSION

Postpartum women's perspectives on POP focused on the difficulty of continuing life routines, self-drive for improvement, and motivation to raise awareness for others. Through learning from women's self-reported experiences, physicians can better meet women's needs and improve care for POP.

摘要

目的

通过对 Reddit 上发表的关于盆腔器官脱垂(POP)的产后女性的生物心理体验进行定性分析,Reddit 是一个广泛用于匿名讨论和信息共享的互联网平台。POP 是产后女性中常见的病症,但由于社会耻辱感,个人的经历往往没有被讨论过。

方法

2018 年 8 月,在拥有超过 57000 名订阅者的产后母亲的“Beyondthebump”Reddit 论坛上,以“脱垂”为关键词查询有关 POP 的帖子,以收集 POP 的帖子。由 2 名独立研究人员对帖子进行定性分析。应用扎根理论的原则并生成初步主题。这些主题用于衍生出新兴概念。

结果

我们分析了 2014 年至 2018 年期间的 28 个独特帖子和 390 个回复。定性分析得出了 3 个初步主题。(1)女性不知道产后可能会发生 POP,并且对缺乏产前讨论感到沮丧。(2)女性表示需要支持性、全面和即时的护理。(3)POP 的症状包括疼痛和不适,导致日常生活困难。衍生出了 3 个新兴概念。(1)POP 是一种具有身心影响的困难和使人衰弱的疾病。(2)患有 POP 的女性具有自主能动性,并积极寻求帮助。(3)有提高 POP 意识的动机。

结论

产后女性对 POP 的看法集中在继续日常生活的困难、自我改善的动力以及提高对他人的认识的动机上。通过学习女性自我报告的经验,医生可以更好地满足女性的需求并改善 POP 的护理。

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