Center to Improve Veteran Involvement in Care, VA Portland Health Care System, USA; Oregon Health & Science University-Portland State University School of Public Health, USA.
Center to Improve Veteran Involvement in Care, VA Portland Health Care System, USA; Department of Family Medicine, Oregon Health & Science University, USA.
Healthc (Amst). 2020 Sep;8(3):100441. doi: 10.1016/j.hjdsi.2020.100441. Epub 2020 Jun 22.
To understand patients' and caregivers' experiences with and perceptions of a federally-mandated program within the Department of Veterans Affairs (VA) that provides educational and monetary support to family caregivers of post-9/11 Veterans.
Twenty-six Veterans and their family caregivers were recruited to participate in individual and dyadic interviews. Interviews lasted between 60 and 90 min and took place between August 2016 and July 2018 in Oregon and Louisiana. Interviews were recorded, transcribed and coded by multiple team members. Recurrent themes and categories were identified through close examination of coded text and comparison within and across transcripts.
Three main themes emerged in the data: 1) appreciation of the caregiver program for validating and compensating family caregiver work; 2) perception that some caregiving activities are less visible, and thus go unrecognized and uncompensated; 3) concern about loss of benefits.
Implications and policy recommendations for programs to support family caregivers, both within the VA and in the context of the broader national movement to support family caregivers, are discussed.
了解退伍军人事务部(VA)一项强制性联邦计划的患者和护理人员的体验和看法,该计划为 9/11 后退伍军人的家庭护理人员提供教育和经济支持。
招募了 26 名退伍军人及其家庭护理人员参加个人和双人访谈。访谈持续 60 到 90 分钟,于 2016 年 8 月至 2018 年 7 月在俄勒冈州和路易斯安那州进行。访谈由多名团队成员进行记录、转录和编码。通过对编码文本的仔细检查以及对转录本内和跨转录本的比较,确定了反复出现的主题和类别。
数据中出现了三个主要主题:1)对 caregiver 计划的感激,该计划验证并补偿了家庭护理人员的工作;2)认为一些护理活动不太明显,因此未得到认可和补偿;3)对福利丧失的担忧。
讨论了支持家庭护理人员的计划的影响和政策建议,这些计划既在 VA 内部,也在更广泛的支持家庭护理人员的国家运动的背景下。