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沙特阿拉伯的哮喘患者——影响哮喘管理的偏好、健康观念及经历

Asthma patients in Saudi Arabia - preferences, health beliefs and experiences that shape asthma management.

作者信息

Alzayer Reem, Almansour Hadi A, Basheti Iman, Chaar Betty, Al Aloola Noha, Saini Bandana

机构信息

Sydney Pharmacy School, Faculty of Medicine and Health, The University of Sydney, Camperdown, Australia.

Vice President and Dean of the Faculty of Pharmacy, Applied Science Private University, Amman, Jordan.

出版信息

Ethn Health. 2022 May;27(4):877-893. doi: 10.1080/13557858.2020.1817868. Epub 2020 Sep 15.

DOI:10.1080/13557858.2020.1817868
PMID:32931314
Abstract

UNLABELLED

The aim of this study was to explore the experience of Saudi participants in managing their asthma and their perspectives about using future pharmacy-based services for asthma management.

METHODS

Semi-structured interviews were conducted with adult Saudis with asthma or those who were a carer of a child with asthma. Participants were recruited from medical practices and community centres in Riyadh, Saudi Arabia. Verbatim transcribed interviews were inductively analysed using thematic analysis.

RESULTS

Twenty-three Saudi participants with asthma or caring for those with asthma took part in interviews which lasted on average for 25 min. Most participants did not have well-controlled asthma. Thematic analyses of the interview transcripts highlighted four key emergent themes: participants experience of asthma, participants' beliefs and perceptions about health and medicines, perception of health professionals and advocacy and social support. Many participants expressed an emotional burden in their lived experience of asthma. Lack of self-management skills were evident in participants' reluctance to make decisions in emergency situations. Some participants had strong beliefs about using herbal medicines rather than western medicines. Using social media or consulting with their family members with asthma was a common preference, rather than consulting healthcare professionals. Participants' were rather unclear about pharmacy asthma care services and reported not having experienced such services in their pharmacies.

CONCLUSION

Inadequate self-management behaviours may affect the level of asthma control in people with asthma in Saudi Arabia. Improved primary care models with extensive focus on asthma education are needed to relieve the over-reliance on tertiary care help-seeking models that are currently the norm. Current evidence-based information also needs to be prepared in patient friendly formats and disseminated widely. Community pharmacists would need to be trained and skilled inpatient engagement and would have to win the public trust for viable asthma services provision.

摘要

未标注

本研究的目的是探索沙特参与者管理哮喘的经历以及他们对未来利用基于药房的服务进行哮喘管理的看法。

方法

对患有哮喘的成年沙特人或患有哮喘儿童的照顾者进行了半结构化访谈。参与者从沙特阿拉伯利雅得的医疗诊所和社区中心招募。对逐字转录的访谈进行归纳分析,采用主题分析法。

结果

23名患有哮喘或照顾哮喘患者的沙特参与者参加了访谈,访谈平均持续25分钟。大多数参与者的哮喘控制不佳。访谈记录的主题分析突出了四个关键的新出现主题:参与者的哮喘经历、参与者对健康和药物的信念与认知、对医疗专业人员的认知以及倡导和社会支持。许多参与者在哮喘的生活经历中表达了情感负担。参与者在紧急情况下不愿做决定,这明显体现出缺乏自我管理技能。一些参与者对使用草药而非西药有强烈的信念。使用社交媒体或咨询患有哮喘的家庭成员是常见的偏好,而不是咨询医疗保健专业人员。参与者对药房哮喘护理服务相当不清楚,并报告在他们的药房没有体验过此类服务。

结论

自我管理行为不足可能会影响沙特阿拉伯哮喘患者的哮喘控制水平。需要改进初级保健模式,广泛关注哮喘教育,以减轻目前作为常态的对三级护理求助模式的过度依赖。还需要以患者友好的形式编写并广泛传播当前基于证据的信息。社区药剂师需要接受培训并熟练掌握患者参与技巧,并且必须赢得公众信任,以便提供可行的哮喘服务。

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