Department of Occupational Therapy, Faculty of Health Sciences, Ariel University, Ariel.
Department of Occupational Therapy, Faculty of Social Welfare & Health Sciences University of Haifa, Mount Carmel, Haifa, Israel.
J Pediatr Gastroenterol Nutr. 2021 Feb 1;72(2):e42-e47. doi: 10.1097/MPG.0000000000002946.
The aim was to examine the reliability and validity of the Illness Identity Questionnaire (IIQ) among adolescents with celiac disease (CD), to describe their illness identity characteristics, and to examine relationships between illness identity and self-reported participation in food-related activities and quality of life.
Adolescents with CD (n = 91) were recruited for this cross-sectional study via social media interest groups. Participants completed online questionnaires: the IIQ, the CD Children's Activities Chart (CD-Chart), and the Pediatric Quality of Life Inventory (PedsQL).
Internal reliability was established for IIQ items (α = 0.87) and for its 4 components (α = 0.75--0.90). The positive components (acceptance, enrichment) significantly differed from the negative components (rejection, engulfment), t(90) = 11.45, P < 0.001, d = 1.98. Feelings were more positive (M = 3.48, SD = 0.67) than negative (M = 2.06, SD = 0.76). The total IIQ was positively associated with the CD-Chart amount of activities (r = 0.30, P < 0.01) and enjoyment (r = 0.34, P < 0.001) and with the PedsQL social scale (r = 0.53, P < 0.001).
The IIQ established acceptable reliability and validity. In all, the adolescents with CD exhibited an illness identity profile that was more positive and adaptive than negative. The IIQ can contribute to understanding the developmental status of illness identity during the critical transition process from adolescence to adulthood.
本研究旨在检验乳糜泻青少年患者使用疾病认同问卷（Illness Identity Questionnaire，IIQ）的信度和效度，描述其疾病认同特征，并探讨疾病认同与自我报告的与食物相关的活动参与度和生活质量之间的关系。
本横断面研究通过社交媒体兴趣小组招募乳糜泻青少年患者。参与者在线完成问卷：IIQ、乳糜泻儿童活动图表（CD Children's Activities Chart，CD-Chart）和儿科生活质量量表（Pediatric Quality of Life Inventory，PedsQL）。
IIQ 项目的内部信度（α=0.87）和 4 个分量表的信度（α=0.75-0.90）均得到确立。积极分量表（接受、丰富）与消极分量表（拒绝、吞噬）存在显著差异，t（90）=11.45，P<0.001，d=1.98。与消极感受（M=2.06，SD=0.76）相比，青少年患者的感受更积极（M=3.48，SD=0.67）。IIQ 总分与 CD-Chart 活动量（r=0.30，P<0.01）和享受程度（r=0.34，P<0.001）以及 PedsQL 社交量表呈正相关（r=0.53，P<0.001）。
IIQ 具有可接受的信度和效度。总之，乳糜泻青少年患者表现出更积极和适应性的疾病认同特征。IIQ 有助于理解从青少年到成年的关键过渡过程中疾病认同的发展状况。
