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父母自述其患癌子女死亡后的健康和痛苦状况

A Portrait of Self-Reported Health and Distress in Parents Whose Child Died of Cancer.

机构信息

Department of Psychology, Université de Montréal, Montréal, Québec, Canada.

Sainte-Justine University Health Center, Montréal, Québec, Canada.

出版信息

Omega (Westport). 2022 Sep;85(4):958-973. doi: 10.1177/0030222820959943. Epub 2020 Sep 20.

DOI:10.1177/0030222820959943
PMID:32954944
Abstract

Grieving a child following cancer is a substantially difficult task. The objectives of this research were: 1) to describe current quality of life (QoL), psychological distress and symptoms of grief of bereaved parents, and 2) to explore the role of possible contributors of QoL and psychological distress. Forty-six parents (32 mothers) of children who died of cancer were surveyed on their QoL, distress, and complicated grief. Data were analyzed using multiple linear regression. Parents had a high frequency of grieving symptoms (58%). Mothers reported more retrospective grief symptoms than fathers when describing the year after child death. Current lower mental well-being was associated with experiencing higher retrospective grief symptoms, a shorter period since child death, and being a father. Hence, parents experienced disturbances even long after child death. Mothers and fathers may present specificities that should be considered when developing supportive activities for this vulnerable population.

摘要

丧子之痛对父母来说是一项艰巨的任务。本研究的目的是:1)描述丧亲父母的生活质量(QoL)、心理困扰和悲伤症状;2)探讨 QoL 和心理困扰的可能影响因素。对 46 名(32 名母亲)因癌症去世的儿童的父母进行了生活质量、困扰和复杂悲伤的调查。使用多元线性回归分析数据。研究结果显示,父母有较高频率的悲伤症状(58%)。在描述孩子去世后的一年时,母亲比父亲报告了更多的回溯性悲伤症状。目前心理健康状况较差与经历更高的回溯性悲伤症状、孩子去世后时间较短以及父亲身份有关。因此,即使在孩子去世很久后,父母仍会感到困扰。在为这个脆弱的群体提供支持活动时,应该考虑到母亲和父亲的特殊性。

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