父亲对其孩子患小儿脑肿瘤的经历
Fathers' Experience of Their Child's Paediatric Brain Tumour.
作者信息
Labrell Florence, Hassler Christine, Dufour Christelle, Grill Jacques, Câmara-Costa Hugo
机构信息
Université Paris-Saclay, Université Paris-SUD, UVSQ, CESP, INSERM, Paris, France.
INSEI (National Institute for Inclusive Education), Suresnes, France.
出版信息
Cancer Rep (Hoboken). 2024 Dec;7(12):e70061. doi: 10.1002/cnr2.70061.
BACKGROUND
This exploratory study explores the impact of paediatric brain cancer on the experiences of the fathers from the time of diagnosis, while most studies have focused on the mothers.
METHODS
The content of interviews conducted with six fathers of children who had brain tumours at the age of approximately 10 years was analysed using a qualitative methodology, following the COREQ guidelines.
RESULTS
The fathers first talked about their feelings about the way the brain tumour affected their child and how he/she coped with the illness and treatments, and they also described the difficulties encountered. These French fathers likewise talked about their rights, their need to be listened to, and their wish to remain close to their child during treatment.
CONCLUSION
Improving communication with fathers during care and medical visits could help promote more balanced support for both parents in the vulnerable period of serious paediatric illnesses such as brain tumours.
背景
这项探索性研究探讨了小儿脑癌自诊断之时起对父亲经历的影响，而大多数研究都聚焦于母亲。
方法
按照COREQ指南，采用定性方法分析了对六名孩子患脑肿瘤、年龄约10岁的孩子的父亲所进行访谈的内容。
结果
父亲们首先谈到了他们对脑肿瘤影响孩子的方式的感受，以及孩子应对疾病和治疗的方式，他们还描述了所遇到的困难。这些法国父亲同样谈到了他们的权利、希望被倾听的需求，以及在孩子治疗期间希望陪伴在其身边的愿望。
结论
在护理和就医过程中改善与父亲的沟通，有助于在小儿脑肿瘤等严重儿科疾病的脆弱期为父母双方提供更均衡的支持。
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