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移植了已故供体的肾脏后的生活体验。

The experiences of living with a transplanted kidney from a deceased donor.

机构信息

Babeș-Bolyai University, Cluj Napoca, Romania.

Freie Universität Berlin, Berlin, Germany.

出版信息

J Ren Care. 2021 Mar;47(1):58-67. doi: 10.1111/jorc.12349. Epub 2020 Sep 23.

Abstract

BACKGROUND

Kidney transplantation is considered an optimal treatment option for patients with end-stage kidney disease in terms of survival rate, quality of life and cost-effectiveness. However, posttransplant life involves many medical, psychological and social challenges for transplant recipients. Understanding individuals' challenges and needs after transplantation is a prerequisite for developing effective patient education and self-management programmes.

OBJECTIVE

To explore how individuals experience life with a transplanted kidney from a deceased donor.

METHODS

The purposive sample included eight kidney transplant recipients. In-depth semi-structured interviews were conducted and analysed using interpretative phenomenological analysis.

FINDING

Three main themes emerged from the data and each one presents a certain aspect of the posttransplant experience: an inner struggle to find a new normality (personal level), me and the others (relational level) and only between me, my donor and god (spiritual level).

CONCLUSION

The experience of receiving a kidney from a deceased donor represents a complex psychological challenge for recipients. The study is unique as it shows the spiritual dimension of the transplantation experience and how the recipients' views on transplantation and organ donation are shaped by their religious and cultural background, indicating the importance of a holistic nursing approach.

摘要

背景

就生存率、生活质量和成本效益而言,肾移植被认为是终末期肾病患者的最佳治疗选择。然而,移植后患者的生活涉及到许多医疗、心理和社会挑战。了解移植后个体的挑战和需求是制定有效的患者教育和自我管理计划的前提。

目的

探讨从已故供体接受肾移植的个体如何体验生活。

方法

采用目的性抽样,选取了 8 名肾移植受者。采用解释现象学分析方法对深入半结构化访谈进行分析。

结果

从数据中出现了三个主要主题,每个主题都呈现了移植后体验的某个方面:努力寻找新的常态(个人层面)、我和他人(关系层面)以及只有我、我的供体和上帝(精神层面)。

结论

接受已故供体的肾移植代表了受者面临的复杂心理挑战。该研究的独特之处在于,它展示了移植体验的精神层面,以及受者对移植和器官捐赠的看法如何受到其宗教和文化背景的影响,这表明整体护理方法的重要性。

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