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为脊髓损伤患者设计无障碍教育资源。

Designing accessible educational resources for people living with spinal cord injury.

机构信息

Menzies Health Institute Queensland, Griffith University, Gold Coast, Australia.

School of Nursing and Midwifery, Griffith University, Nathan, Australia.

出版信息

J Spinal Cord Med. 2022 May;45(3):442-454. doi: 10.1080/10790268.2020.1808772. Epub 2020 Sep 24.

DOI:10.1080/10790268.2020.1808772
PMID:32970969
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9135423/
Abstract

To identify themes of interest for the production of educational resources for people with spinal cord injury (SCI). A mixed-method study. Outpatient SCI community in Australia. Individuals with a SCI, or carers, family & friends of people who live with a SCI ( = 116). Not applicable. Quantify themes of interest perceived within the Australian SCI community as necessary for the development of SCI educational resources. All seven individuals from the focus-group interviews suggested that educational resources on body physiology, secondary complications, injury pathophysiology, and health and wellbeing maintenance would be most pertinent for development. These themes (among others) were further explored and quantitatively evaluated via an online survey which demonstrated that interviewees ranked 'Your injury' as being of highest importance for the production of educational resources. Within each theme, the sub-categories; 'Bowel/bladder' and 'What equipment is covered in the National Disability Insurance Scheme (NDIS)' were ranked as being of highest importance for the production of educational resources. We have identified multiple areas of interest in the design and production of educational resources for individuals with SCI.

摘要

为了确定脊髓损伤(SCI)人群教育资源制作的主题。一项混合方法研究。澳大利亚门诊 SCI 社区。SCI 患者或护理人员、与 SCI 患者一起生活的人的家属和朋友( = 116)。不适用。量化澳大利亚 SCI 社区内认为有必要制作 SCI 教育资源的主题。焦点小组访谈中的 7 个人都认为,关于身体生理学、继发性并发症、损伤病理生理学以及健康和幸福感维护的教育资源将是最相关的。通过在线调查进一步探讨和定量评估了这些主题(以及其他主题),调查结果表明,受访者将“您的损伤”列为制作教育资源的最重要主题。在每个主题中,“肠道/膀胱”和“国家残疾保险计划(NDIS)涵盖的设备有哪些”被列为制作教育资源的最重要主题。我们已经确定了设计和制作 SCI 人群教育资源的多个感兴趣领域。

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本文引用的文献

1
Blended face-to-face and online/computer-based education approaches in chronic disease self-management: A critical interpretive synthesis. blended 面对面和在线/基于计算机的教育方法在慢性病自我管理中的应用:批判性综合解释。
Patient Educ Couns. 2019 Oct;102(10):1822-1832. doi: 10.1016/j.pec.2019.05.009. Epub 2019 May 7.
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Education provision for patients following a spinal cord injury.脊髓损伤患者的教育服务
Br J Nurs. 2019 Mar 28;28(6):377-381. doi: 10.12968/bjon.2019.28.6.377.
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Physical Activity & People with Disabilities - A Qualitative Process and Outcome Pilot Evaluation of the Non-Profit Organization AccesSurf Hawai'i.身体活动与残疾人——对夏威夷非营利组织AccesSurf的定性过程与结果试点评估
Hawaii J Med Public Health. 2019 Feb;78(2):52-60.
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Home-Based Exercise Enhances Health-Related Quality of Life in Persons With Spinal Cord Injury: A Randomized Controlled Trial.家庭为基础的运动可提高脊髓损伤患者的健康相关生活质量:一项随机对照试验。
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"Theory Does Not Get You From Bed to Wheelchair": A Qualitative Study on Patients' Views of an Education Program in Spinal Cord Injury Rehabilitation.“理论无法让你从床上坐到轮椅上”:一项关于患者对脊髓损伤康复教育项目看法的定性研究
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Satisfaction of Patients With Spinal Cord Injury With Self-Care Teaching by Nurses: Is It Influenced by Learning Readiness?脊髓损伤患者对护士自我护理教学的满意度:它受学习准备状态的影响吗?
Rehabil Nurs. 2018 May/Jun;43(3):138-148. doi: 10.1097/rnj.0000000000000014.
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Exercise and mental health.锻炼与心理健康。
Maturitas. 2017 Dec;106:48-56. doi: 10.1016/j.maturitas.2017.09.003. Epub 2017 Sep 7.
8
An integrative review of e-learning in the delivery of self-management support training for health professionals.电子学习在提供健康专业人员自我管理支持培训中的综合回顾。
BMC Med Educ. 2017 Oct 10;17(1):183. doi: 10.1186/s12909-017-1022-0.
9
Depressive symptoms among older adults with long-term spinal cord injury: Associations with secondary health conditions, sense of coherence, coping strategies and physical activity.患有长期脊髓损伤的老年人的抑郁症状:与继发性健康状况、连贯感、应对策略和身体活动的关联
J Rehabil Med. 2017 Aug 31;49(8):644-651. doi: 10.2340/16501977-2259.
10
Impact of Therapy on Recovery during Rehabilitation in Patients with Traumatic Spinal Cord Injury.治疗对创伤性脊髓损伤患者康复期间恢复的影响。
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