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“理论无法让你从床上坐到轮椅上”:一项关于患者对脊髓损伤康复教育项目看法的定性研究

"Theory Does Not Get You From Bed to Wheelchair": A Qualitative Study on Patients' Views of an Education Program in Spinal Cord Injury Rehabilitation.

作者信息

Bernet Madeleine, Sommerhalder Kathrin, Mischke Claudia, Hahn Sabine, Wyss Adrian

机构信息

Applied Research and Development in Nursing, Berne University of Applied Sciences, Berne, Switzerland.

Nursing Development and Training, Swiss Paraplegic Centre, Nottwil, Switzerland.

出版信息

Rehabil Nurs. 2019 Sep/Oct;44(5):247-253. doi: 10.1097/rnj.0000000000000175.

Abstract

PURPOSE

The aim of this study was to evaluate a new nurse-guided patient education program in spinal cord injury rehabilitation with particular focus on the patients' perspectives and experiences.

DESIGN

Longitudinal qualitative study.

METHODS

We conducted face-to-face interviews with 10 rehabilitation patients and used the content analysis method to analyze the data.

FINDINGS

Patients emphasized the importance of the practical training of the education program. This impacted their well-being as well as their autonomy. They rated discussions with primary nurses and peers about physical or psychological concerns. However, after discharge, the learning process was ongoing, and patients experienced the transition to living at home as a major challenge.

CONCLUSIONS AND CLINICAL RELEVANCE

This research provides valuable information from the patients' perspective for enhancing spinal cord injury patient education. Situational learning, based on the practical parts of patient education and working with peers, is highlighted.

摘要

目的

本研究旨在评估一项新的由护士指导的脊髓损伤康复患者教育项目,特别关注患者的观点和体验。

设计

纵向定性研究。

方法

我们对10名康复患者进行了面对面访谈,并使用内容分析法对数据进行分析。

结果

患者强调了教育项目实践培训的重要性。这影响了他们的幸福感和自主性。他们对与责任护士和同伴就身体或心理问题进行的讨论给予好评。然而,出院后,学习过程仍在继续,患者将过渡到居家生活视为一项重大挑战。

结论及临床意义

本研究从患者角度提供了有价值的信息,以加强脊髓损伤患者教育。基于患者教育实践部分并与同伴合作的情境学习得到了强调。

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