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1型糖尿病青少年的责任分担:一项范围综述。

Responsibility sharing for adolescents with type 1 diabetes: A scoping review.

作者信息

Gardener Lisa, Desha Laura, Bourke-Taylor Helen, Ziviani Jenny

机构信息

School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia.

School of Primary and Allied Health Care, Faculty of Medicine, Nursing and Health Sciences, Monash University - Peninsula Campus, Frankston, Australia.

出版信息

Chronic Illn. 2022 Mar;18(1):6-21. doi: 10.1177/1742395320959406. Epub 2020 Sep 30.

DOI:10.1177/1742395320959406
PMID:32998528
Abstract

BACKGROUND

The term 'Responsibility Sharing', albeit poorly defined, has emerged from the diabetes literature, to describe a distinct mechanism for comprehensively managing the characteristic shift in responsibility that underpins the transition to self-management for adolescents.

METHODS

A scoping review, following the PRISMA-ScR guidelines, distilled the literature from seven databases to answer the questions: What is responsibility sharing? Who are the key stakeholders? What factors affect responsibility transaction? What are its recognized outcomes? How is responsibility shared?

RESULTS

Responsibility sharing is a transactional arrangement between youth and their caregiver/s that functions to repeatedly and flexibly apply ownership to the management of diabetes care tasks, across the course of adolescence. In the main, responsibility sharing was associated with better metabolic and/or psychosocial outcomes. Effective responsibility sharing was seen as being responsive to adolescent capacity and driven by autonomy supportive, sustained communication patterns that enable mutually agreeable responsibility assumption by all stakeholders.

CONCLUSION

Different perspectives on responsibility sharing for adolescents with Type 1 diabetes, and the lack of a universal definition, have led to discordance within the literature about its operationalization and measurement. This paper proposes a definition of responsibility sharing for future researchers to apply.

摘要

背景

“责任分担”这一术语虽定义模糊,但已在糖尿病文献中出现,用于描述一种独特机制,以全面管理责任的特征性转变,这种转变是青少年向自我管理过渡的基础。

方法

按照PRISMA-ScR指南进行范围综述,从七个数据库中提炼文献,以回答以下问题:什么是责任分担?关键利益相关者有哪些?哪些因素影响责任转移?其公认的结果是什么?责任如何分担?

结果

责任分担是青少年与其照顾者之间的一种交易安排,其作用是在整个青春期对糖尿病护理任务的管理反复且灵活地应用所有权。总体而言,责任分担与更好的代谢和/或心理社会结果相关。有效的责任分担被视为对青少年能力有反应,并由自主性支持的持续沟通模式驱动,这种模式能使所有利益相关者达成相互认可的责任承担。

结论

对于1型糖尿病青少年责任分担的不同观点以及缺乏统一的定义,导致文献中关于其实施和测量存在不一致。本文提出了责任分担的定义,供未来研究人员应用。

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