Kobos Ewa, Rojkowska Sylwia, Szewczyk Alicja, Dziedzic Beata
Department of Development of Nursing, Social and Medical Sciences, Faculty of Health Sciences, Medical University of Warsaw, Warsaw, Poland.
Polish Federation for Diabetes Education, Warsaw, Poland.
Biopsychosoc Med. 2023 Oct 6;17(1):34. doi: 10.1186/s13030-023-00291-4.
Treatment of type 1 diabetes is a process involving not only sick children, but also their caregivers.
To assess the burden of care and sense of loneliness in caregivers of children with type 1 diabetes. Also, an analysis was conducted of the connection between sociodemographic factors characterizing caregivers and the clinical factors characterizing sick children and between the burden of care and the sense of loneliness.
The study included 125 caregivers of children with type 1 diabetes. In order to collect the research data, the Caregiver Burden Scale and the Revised UCLA Loneliness Scale were used.
In the research group, the total result in the caregiving burden scale was 2.14, which remains within the average burden level. Caregivers showed the highest burden level in the General Strain Subscale. The analysis showed that mothers experience a greater burden of care than fathers in the General Strain Subscale and that caregivers of younger children are more burdened with care within the Isolation and Disappointment Subscales. Moderate high degree of loneliness was shown in 4.8% of caregivers. A higher burden of care for caregivers of children with type 1 diabetes is accompanied by a higher sense of loneliness.
The results of this study may help healthcare professionals plan a holistic, family-centered care program that will take into account factors that increase the burden of care: younger age of the affected child, motherhood, caregiver unemployment, feelings of loneliness, lower education, caregiver unemployment, blood glucose meter measurements, and frequent night-time blood glucose measurements.
1型糖尿病的治疗是一个不仅涉及患病儿童，还涉及其照顾者的过程。
评估1型糖尿病患儿照顾者的护理负担和孤独感。此外，还分析了表征照顾者的社会人口学因素与表征患病儿童的临床因素之间的联系，以及护理负担与孤独感之间的联系。
该研究纳入了125名1型糖尿病患儿的照顾者。为收集研究数据，使用了照顾者负担量表和修订版的加州大学洛杉矶分校孤独感量表。
在研究组中，照顾负担量表的总得分是2.14，仍处于平均负担水平。照顾者在一般压力子量表中的负担水平最高。分析表明，在一般压力子量表中，母亲比父亲经历更大的护理负担，并且在隔离与失望子量表中，年幼儿童的照顾者护理负担更重。4.8%的照顾者表现出中度高度孤独感。1型糖尿病患儿照顾者较高的护理负担伴随着较高的孤独感。
本研究结果可能有助于医疗保健专业人员制定一个全面的、以家庭为中心的护理计划，该计划将考虑增加护理负担的因素：患病儿童年龄较小、母亲身份、照顾者失业、孤独感、教育程度较低、照顾者失业、血糖仪测量以及频繁的夜间血糖测量。
