为患者提供有关眼球震颤的信息。
The Provision of Patient Information about Nystagmus.
作者信息
Bjerre Anne, Arblaster Gemma E, Nye Arthur, Griffiths Helen J
机构信息
Academic Unit of Ophthalmology and Orthoptics, University of Sheffield, UK.
出版信息
Br Ir Orthopt J. 2018 May 10;14(1):25-29. doi: 10.22599/bioj.105.
AIMS
The aims of this study were to evaluate the current provision of patient information about nystagmus in orthoptic clinics in the UK and Ireland and to develop a standardised information pack about nystagmus.
METHODS
A questionnaire was circulated to orthoptists in the UK and Ireland asking whether they had information to provide to patients with nystagmus, what was included in this information and how it could be improved. Orthoptists were also asked what should be included in a standardised information pack about nystagmus.
RESULTS
Two hundred and thirty three orthoptists completed the questionnaire. One-third of responding orthoptists did not have information to provide to patients with nystagmus. Most reported the information available to them included details of support services and physical symptoms. Including information about living with nystagmus at different ages and long-term prognosis were the most common suggestions to improve information about nystagmus. More than half of orthoptists selected all the suggested topics to be included in a standardised information pack, with support services and long-term prognosis most frequently selected.
CONCLUSIONS
Only 67% of responding orthoptists had information about nystagmus to give to patients or their families. Ways to improve the current information and content considered important by orthoptists were taken into account to create a nystagmus information pack, which is now available online.
目的
本研究的目的是评估英国和爱尔兰眼科诊所目前为眼球震颤患者提供的信息情况，并制定一份关于眼球震颤的标准化信息包。
方法
向英国和爱尔兰的眼科视光师发放问卷，询问他们是否有信息提供给眼球震颤患者、这些信息包含哪些内容以及如何改进。还询问了眼科视光师关于眼球震颤的标准化信息包应包含哪些内容。
结果
233名眼科视光师完成了问卷。三分之一的受访眼科视光师没有信息可提供给眼球震颤患者。大多数人报告说他们可获得的信息包括支持服务细节和身体症状。纳入不同年龄段眼球震颤患者的生活情况及长期预后信息是改进眼球震颤相关信息的最常见建议。超过一半的眼科视光师选择了标准化信息包中所有建议纳入的主题，其中支持服务和长期预后被选频率最高。
结论
只有67%的受访眼科视光师有关于眼球震颤的信息可提供给患者或其家属。考虑到改进当前信息的方法以及眼科视光师认为重要的内容，创建了一份眼球震颤信息包，目前可在线获取。
Zotero 插件