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改善非正规痴呆症照护者健康及生活质量相关结果的移动健康干预措施:一项范围综述。

Mhealth interventions to improve health and quality of life related outcomes for informal dementia caregivers: A scoping review.

作者信息

Faieta Julie, Sheehan Jamie, DiGiovine Carmen

机构信息

School of Health and Rehabilitation Sciences, The Ohio State University, Columbus, Ohio, USA.

Battelle Biomedical Research Center, West Jefferson, North Carolina, USA.

出版信息

Assist Technol. 2022 May 4;34(3):362-374. doi: 10.1080/10400435.2020.1829174. Epub 2021 Mar 5.

DOI:10.1080/10400435.2020.1829174
PMID:33006526
Abstract

BACKGROUND

The devastating effects of dementia extend to the health and well-being of informal dementia caregivers. The physical and mental requirements of serving as a dementia caregiver are evidenced in the negative health effects that this population experiences. There is a present need for effective interventions to improve health and quality of life in informal dementia caregivers.

OBJECTIVE

To investigate the health and well-being related outcomes following mHealth use in dementia caregiver and care recipient populations.

METHODS

A scoping review was undertaken to investigate mHealth use in dementia caregivers. Searches spanning four databases yielded 172 articles. Following screening procedures, 12 articles were included for data extraction..

RESULTS

Articles were organized into three major themes: social and indirect support, health education, and technology-supported monitoring. Social and indirect support apps may be valuable for caregiver stress relief, confidence, and fatigue. Health education apps were found to 1) assist with the organization of user's health information, and 2) impact depressive symptoms. Monitoring apps provided caregivers with methods of observing both physical and emotional well-being..

CONCLUSION

Currently, the limited evidence on the usability and usefulness of mHealth within dementia caregiver populations indicates that mHealth holds promise as an intervention platform and warrants continued investigation. AD: Alzheimer's Disease; CANE: Camberwell Assessment of Need for the Elderly; CCS: Caregiver Competence Scale, CDN: COGKNOW Day Navigator; CES-D: Center for Epidemiologic Studies Depression Scale; CG: Caregivers; CQoL-AD: Carer's Overall Quality of Life in Alzheimer's Disease; Dx: Diagnosis; ESM: experience sampling methodology; FB: Facebook; PA: Positive Affect; Pss-14: Perceived Stress Scale; QOL: Quality of Life; RCSS: Revised Caregiving Satisfaction Scale; SSCQ: Short Sense of Competence Questionnaire.

摘要

背景

痴呆症的破坏性影响延伸至非正式痴呆症照料者的健康和幸福。作为痴呆症照料者的身心需求在这一人群所经历的负面健康影响中得到体现。目前需要有效的干预措施来改善非正式痴呆症照料者的健康和生活质量。

目的

调查痴呆症照料者和受照料者使用移动健康技术(mHealth)后的健康和幸福相关结果。

方法

进行了一项范围综述,以调查痴呆症照料者对移动健康技术的使用情况。在四个数据库中进行检索,共获得172篇文章。经过筛选程序,纳入12篇文章进行数据提取。

结果

文章分为三个主要主题:社会和间接支持、健康教育以及技术支持的监测。社会和间接支持应用程序可能对缓解照料者压力、增强信心和减轻疲劳有价值。发现健康教育应用程序:1)有助于整理用户的健康信息,2)影响抑郁症状。监测应用程序为照料者提供了观察身体和情绪健康状况的方法。

结论

目前,关于移动健康技术在痴呆症照料者群体中的可用性和实用性的证据有限,这表明移动健康技术作为一种干预平台具有潜力,值得继续研究。AD:阿尔茨海默病;CANE:坎伯韦尔老年人需求评估;CCS:照料者能力量表;CDN:COGKNOW日导航器;CES-D:流行病学研究中心抑郁量表;CG:照料者;CQoL-AD:阿尔茨海默病照料者总体生活质量;Dx:诊断;ESM:经验取样法;FB:脸书;PA:积极情绪;Pss-14:感知压力量表;QOL:生活质量;RCSS:修订的照料满意度量表;SSCQ:简短能力感问卷。

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