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青少年和青年癌症患者与癌症相关的疲劳:临床医生的观点、实践和挑战。

Cancer-related fatigue in teenage and young adult cancer patients: Clinicians' perspectives, practice and challenges.

机构信息

Department of Psychology, University of Bath, Bath, UK.

Bristol Medical School, University of Bristol, Bristol, UK.

出版信息

Eur J Cancer Care (Engl). 2021 Jan;30(1):e13337. doi: 10.1111/ecc.13337. Epub 2020 Oct 4.

Abstract

OBJECTIVE

Cancer-related fatigue (CRF) is a common and distressing symptom experienced by teenage and young adult cancer patients (TYAs). This study aimed to explore clinicians' perspectives, practices and challenges in supporting TYAs with CRF.

METHOD

Ten clinicians from a TYA multidisciplinary team (MDT) participated in semi-structured interviews which were thematically analysed.

RESULTS

Clinicians perceived CRF as a common, but individual experience for TYAs and framed the broad impact of CRF in the context of TYAs' development. Clinicians' assessment and management of CRF for TYAs varied. Clinicians described a range of challenges affecting their practice in supporting TYAs with CRF, including limited knowledge, difficulties engaging TYAs, inadequate time in consultations and a lack of age-appropriate resources.

CONCLUSIONS

Despite clinicians' good insight into TYAs' unique experiences of CRF, the assessment and management of CRF for TYAs are complicated by numerous challenges. The development of evidence-based interventions and guidelines, clear pathways of care, and TYA-friendly resources, measures and programmes, is vital to support clinicians, and TYAs, in managing CRF.

摘要

目的

癌症相关疲劳(CRF)是青少年和年轻成年癌症患者(TYAs)常见且令人痛苦的症状。本研究旨在探讨临床医生在支持 TYAs 应对 CRF 方面的观点、实践和挑战。

方法

10 名来自 TYA 多学科团队(MDT)的临床医生参与了半结构化访谈,访谈内容进行了主题分析。

结果

临床医生认为 CRF 是 TYAs 的常见但个体性体验,并将 CRF 的广泛影响置于 TYAs 发展的背景下。临床医生对 TYAs 的 CRF 的评估和管理各不相同。临床医生描述了一系列影响他们支持 TYAs 应对 CRF 实践的挑战,包括知识有限、难以接触 TYAs、咨询时间不足以及缺乏适合年龄的资源。

结论

尽管临床医生对 TYAs 独特的 CRF 体验有很好的了解,但对 TYAs 的 CRF 评估和管理受到众多挑战的影响。制定基于证据的干预措施和指南、明确的护理途径,以及为 TYAs 提供友好的资源、措施和方案,对于支持临床医生和 TYAs 管理 CRF 至关重要。

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