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葡萄牙“塔梅加和索萨”地区精神分裂谱系障碍患者的生活条件。

Living conditions of patients with schizophrenia spectrum disorders in the region of 'Tâmega e Sousa' (Portugal).

机构信息

Department of Psychiatry and Mental Health, Centro Hospitalar do Tâmega e Sousa, Penafiel, Portugal.

Department of Clinical Neurosciences and Mental Health, Faculty of Medicine of the University of Porto, Porto, Portugal.

出版信息

Int J Soc Psychiatry. 2021 Aug;67(5):441-447. doi: 10.1177/0020764020962534. Epub 2020 Oct 4.

Abstract

BACKGROUND

Schizophrenia spectrum disorders (SSD) are the most impairing psychiatric disorders and are a major cause of social exclusion. Despite that, there are only two studies published assessing the socioeconomic characteristics of SSD patients living in Portugal.

AIMS

The purpose of this study is to assess the degree of social and family support for SSD patients living in the region of 'Tâmega e Sousa', in northern Portugal.

METHOD

We conducted a cross-sectional observational study using patients under home-based care provided by the Department of Psychiatry and Mental Health of Centro Hospitalar do Tâmega e Sousa. We retrieved sociodemographic data from clinical records. The study was approved by the Hospital Ethics Committee.

RESULTS

Our sample consists on 67 patients with SSD, mostly men (74.6%). Although the majority was single (69.2%) and childless (85.7%), only a minority lived alone (21.2%). In relation to their professional status, only 5.0% were employed and 78.3% got a disability pension. Among the patients that lived accompanied, 68% lived with their parents or grandparents, and a quarter lived with family members affected by psychiatric disorders.

CONCLUSIONS

These findings highlight the dependence of SSD patients on their family's support. Lack of labour market integration, economic dependence and difficulty establishing stable relationships further aggravate their social exclusion. Although our results are consistent with a previous observational study held in Portugal, our patients display a worse functional status. Even considering the possible patient selection bias, there is evidence supporting the need for more investment in psychosocial rehabilitation that should take into account the sociodemographic idiosyncrasies of this Portuguese region.

摘要

背景

精神分裂症谱系障碍(SSD)是最具致残性的精神障碍,也是社会排斥的主要原因。尽管如此,在葡萄牙仅有两项评估 SSD 患者社会经济特征的研究发表。

目的

本研究旨在评估生活在葡萄牙北部泰梅加和索萨地区的 SSD 患者的社会和家庭支持程度。

方法

我们进行了一项横断面观察性研究,使用泰梅加和索萨中心医院精神科提供的家庭护理下的患者。我们从临床记录中检索社会人口统计学数据。该研究得到了医院伦理委员会的批准。

结果

我们的样本由 67 名 SSD 患者组成,大多数为男性(74.6%)。尽管大多数患者未婚(69.2%)且无子女(85.7%),但只有少数独居(21.2%)。在职业状况方面,只有 5.0%的患者就业,78.3%的患者领取残疾抚恤金。在有家属陪伴的患者中,68%与父母或祖父母同住,四分之一与患有精神障碍的家庭成员同住。

结论

这些发现突出了 SSD 患者对家庭支持的依赖。劳动力市场融入不足、经济依赖和难以建立稳定关系进一步加剧了他们的社会排斥。尽管我们的结果与葡萄牙之前进行的一项观察性研究一致,但我们的患者表现出更差的功能状态。即使考虑到可能存在的患者选择偏倚,也有证据表明需要在社会心理康复方面投入更多,这应考虑到该葡萄牙地区的社会人口特征。

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