Centre of Oral Health, School of Health Sciences, Jönköping University, Jönköping, Sweden.
CHILD Research Group, SIDR, Jönköping University, Jönköping, Sweden.
Acta Odontol Scand. 2021 May;79(4):248-255. doi: 10.1080/00016357.2020.1824015. Epub 2020 Oct 5.
To describe parental perceptions of general health, oral health and received dental health care in Swedish children with Down syndrome (DS).
Online questionnaire, quantitative data analysis (Chi-square test).
Parents of 101 children with DS (52 boys, 49 girls, mean age: 9.6 years) participated. Seventy percent rated their child's general health and 74% their child's oral health as good or very good. Parents, who rated their child's oral health as poor (8%), also reported that dental procedures were difficult. Children received dental care at general (55%) and specialist clinics (53%). Ninety-four percent of parents of children receiving specialist dental health care were satisfied compared to 70% of parents with children in general clinics. The parents most valued characteristics of dental professionals were patience (63%) and their ability to engage the child (68%). Parents wanted multidisciplinary collaboration.
Most parents rated their child's general and oral health as good or very good. Children with poor oral health were also reported to have difficulties coping with dental procedures. Parents wanted dental care to be tailored to meet their child's unique needs. They wanted dental professionals to have knowledge about children with a need for special care. Lastly, they requested multidisciplinary collaboration.
描述瑞典唐氏综合征（DS）儿童的父母对其一般健康、口腔健康和接受的口腔保健的看法。
在线问卷调查，定量数据分析（卡方检验）。
101 名 DS 儿童的家长参与了调查（52 名男孩，49 名女孩，平均年龄：9.6 岁）。70%的家长认为他们孩子的一般健康状况良好或非常好，74%的家长认为他们孩子的口腔健康状况良好或非常好。认为孩子口腔健康状况不佳（8%）的家长也报告称，孩子的牙科治疗较为困难。孩子在普通（55%）和专科（53%）诊所接受口腔保健。接受专科口腔保健的儿童家长中，94%的人表示满意，而在普通诊所的儿童家长中，这一比例为 70%。家长最看重牙医的耐心（63%）和与孩子沟通的能力（68%）。家长希望多学科合作。
大多数家长认为他们孩子的一般和口腔健康状况良好或非常好。口腔健康状况不佳的儿童也被报告在处理牙科治疗时存在困难。家长希望口腔保健能够满足他们孩子的特殊需求。他们希望牙医具备照顾有特殊需求儿童的知识。最后，他们要求多学科合作。
