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唐氏综合征儿童的口腔保健:家长对其在口腔保健环境中需求的描述。

Dental health care for children with Down syndrome: Parents' description of their children's needs in dental health care settings.

机构信息

Centre of Oral Health, School of Health Sciences, Jönköping University, Jönköping, Sweden.

CHILD Research Group, SIDR, Jönköping University, Jönköping, Sweden.

出版信息

Eur J Oral Sci. 2022 Jun;130(3):e12859. doi: 10.1111/eos.12859. Epub 2022 Feb 26.

DOI:10.1111/eos.12859
PMID:35218581
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9303609/
Abstract

A visit to the dental clinic may be challenging for a child with Down syndrome due to medical and oral health problems as well as communication problems. The aim of the present study was to explore how parents of children with Down syndrome describe their child's needs in the dental health care setting. In a survey concerning parental experiences with dental health care in Sweden, free comments were analysed with content analysis and resulted in five categories: "Need for continuity of care in dental health care"; "Need for dental health care professionals to have knowledge and expertise in caring for children with Down syndrome and other disabilities"; "Need for dental health care professionals to use a caring approach with children with Down syndrome"; "Need for the child with Down syndrome to be prepared to participate in their dental health care visit" and "Need for the child with Down syndrome to be given the same rights as typically developing children". To support children with Down syndrome in an optimal way, dental health care needs to be tailored to meet the child's unique needs. In addition, dental health care professionals need knowledge of and expertise in the care of children with Down syndrome.

摘要

由于医疗和口腔健康问题以及沟通问题,智障儿童去看牙医可能具有挑战性。本研究的目的是探讨唐氏综合征儿童的父母如何描述他们孩子在口腔保健环境中的需求。在一项关于瑞典父母在牙科保健方面的经验的调查中,对自由评论进行了内容分析,结果分为五类:“在牙科保健中需要连续性照顾的需求”;“牙科保健专业人员需要了解和具备照顾唐氏综合征儿童和其他残疾儿童的知识和专业技能”;“牙科保健专业人员需要对唐氏综合征儿童采用关怀方法”;“需要让唐氏综合征儿童准备好参与他们的牙科保健访问”;“需要让唐氏综合征儿童享有与正常发育儿童相同的权利”。为了以最佳方式支持唐氏综合征儿童,牙科保健需要根据儿童的独特需求进行调整。此外,牙科保健专业人员需要了解并具备照顾唐氏综合征儿童的知识和专业技能。

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3
Caregivers' perceptions of the oral-health-related quality of life of children with special needs in Johannesburg, South Africa.南非约翰内斯堡照顾者对有特殊需求儿童口腔健康相关生活质量的认知
Health SA. 2019 Sep 23;24:1056. doi: 10.4102/hsag.v24i0.1056. eCollection 2019.
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