• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

2013 - 2018年美国儿童孤儿药支出及自付费用趋势

Trends In Orphan Drug Spending And Out-Of-Pocket Spending Among US Children, 2013-18.

作者信息

Chua Kao-Ping, Conti Rena M

机构信息

Kao-Ping Chua (

Rena M. Conti is an associate professor in the Department of Markets, Public Policy, and Law at the Questrom Boston University School of Business, in Boston, Massachusetts.

出版信息

Health Aff (Millwood). 2020 Oct;39(10):1806-1811. doi: 10.1377/hlthaff.2020.00595.

DOI:10.1377/hlthaff.2020.00595
PMID:33017253
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7968887/
Abstract

Among privately insured children, the proportion of inflation-adjusted total health care spending accounted for by orphan drugs increased from 4.0 percent to 6.6 percent between 2013 and 2018. This increase was largely driven by price growth. Mean annual out-of-pocket spending for orphan drugs rose from $486 to $866 and was higher for children than adults.

摘要

在参加私人保险的儿童中,孤儿药在经通胀调整后的总医疗支出中所占比例在2013年至2018年间从4.0%增至6.6%。这一增长主要是由价格上涨推动的。孤儿药的年均自付费用从486美元升至866美元,儿童的自付费用高于成人。

相似文献

1
Trends In Orphan Drug Spending And Out-Of-Pocket Spending Among US Children, 2013-18.2013 - 2018年美国儿童孤儿药支出及自付费用趋势
Health Aff (Millwood). 2020 Oct;39(10):1806-1811. doi: 10.1377/hlthaff.2020.00595.
2
Healthcare expenditures for privately insured US patients with cystic fibrosis, 2010-2016.2010-2016 年美国私人保险囊性纤维化患者的医疗保健支出。
Pediatr Pulmonol. 2018 Dec;53(12):1611-1618. doi: 10.1002/ppul.24178. Epub 2018 Oct 31.
3
Orphan Drug Expenditures In The United States: A Historical And Prospective Analysis, 2007-18.美国孤儿药支出:2007 - 2018年的历史与前瞻性分析
Health Aff (Millwood). 2016 Sep 1;35(9):1588-94. doi: 10.1377/hlthaff.2016.0030.
4
Out-of-pocket Spending on Orphan Drug Prescriptions Among Commercially Insured Adults in 2014.2014年商业保险成年人中孤儿药处方的自付费用
J Gen Intern Med. 2019 Mar;34(3):338-340. doi: 10.1007/s11606-018-4694-1.
5
Prescription drug spending trends for the privately insured in Maryland, 2000-2001.2000 - 2001年马里兰州私人保险人群的处方药支出趋势
Health Aff (Millwood). 2004 Sep-Oct;23(5):226-32. doi: 10.1377/hlthaff.23.5.226.
6
National health care spending in 1991.1991年的国家医疗保健支出。
Health Aff (Millwood). 1993 Spring;12(1):94-110. doi: 10.1377/hlthaff.12.1.94.
7
Recession led to a decline in out-of-pocket spending for children with special health care needs.经济衰退导致有特殊医疗需求的儿童自付支出减少。
Health Aff (Millwood). 2013 Jun;32(6):1054-62. doi: 10.1377/hlthaff.2012.1137.
8
Spending on World Health Organization essential medicines in Medicare Part D, 2011-15: retrospective cost analysis.医疗保险药品计划(Medicare Part D)中 2011-2015 年用于世界卫生组织基本药物的支出:回顾性成本分析。
BMJ. 2019 Jul 17;366:l4257. doi: 10.1136/bmj.l4257.
9
Measuring adequacy of coverage for the privately insured: new state estimates to monitor trends in health insurance coverage.衡量私人保险覆盖范围的充足性:用于监测医疗保险覆盖趋势的新的州估计数据。
Med Care Res Rev. 2009 Apr;66(2):167-80. doi: 10.1177/1077558708330426. Epub 2009 Jan 16.
10
Tracking health care costs: trends stabilize but remain high in 2002.追踪医疗保健成本:趋势趋于稳定,但在2002年仍居高不下。
Health Aff (Millwood). 2003 Jan-Jun;Suppl Web Exclusives:W3-266-74. doi: 10.1377/hlthaff.w3.266.

引用本文的文献

1
Comparative policy analysis of national rare disease funding policies in Australia, Singapore, South Korea, the United Kingdom and the United States: a scoping review.澳大利亚、新加坡、韩国、英国和美国国家罕见病资助政策的比较政策分析:一项范围综述
Health Econ Rev. 2024 Jun 19;14(1):42. doi: 10.1186/s13561-024-00519-1.
2
Disentangling the Cost of Orphan Drugs Marketed in the United States.厘清美国上市的罕见病药物成本
Healthcare (Basel). 2023 Feb 13;11(4):558. doi: 10.3390/healthcare11040558.
3
Trends in orphan drug use and spending among children and adolescents during 2010-2020 in Korea.2010 - 2020年韩国儿童和青少年孤儿药使用及支出趋势。
Front Pharmacol. 2022 Aug 31;13:964426. doi: 10.3389/fphar.2022.964426. eCollection 2022.
4
The economics of moonshots: Value in rare disease drug development.登月计划的经济学:罕见病药物研发的价值
Clin Transl Sci. 2022 Apr;15(4):809-812. doi: 10.1111/cts.13270. Epub 2022 Mar 25.

本文引用的文献

1
Pediatric Orphan Drug Indications: 2010-2018.儿科罕用药适应证:2010-2018 年。
Pediatrics. 2020 Apr;145(4). doi: 10.1542/peds.2019-3128. Epub 2020 Mar 3.