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“她们是我的未来”:加纳残疾女性的生育愿望与动机——对生殖健康护理的启示

'They are my future': childbearing desires and motivations among women with disabilities in Ghana - implications for reproductive healthcare.

作者信息

Ganle John Kuumuori, Apolot Rebecca Racheal, Rugoho Tafadzwa, Sumankuuro Joshua

机构信息

Department of Population, Family and Reproductive Health, School of Public Health, University of Ghana, Legon, P.O. Box LG 13, Accra, Ghana.

Stellenbosch Institute for Advanced Study (STIAS), Wallenberg Research Centre at Stellenbosch University, Stellenbosch, 7600, South Africa.

出版信息

Reprod Health. 2020 Oct 6;17(1):151. doi: 10.1186/s12978-020-01000-y.

Abstract

BACKGROUND

Previous research has highlighted widespread public mis/perceptions that portray women with disabilities (WWDs) as asexual, less likely to marry, and often not interested in childbearing. However, evidence from high-income settings shows that many WWDs are sexually active and do have or want to have children. Notwithstanding this, very few studies have focused on understanding childbearing desires and motivations among WWDs in low-income settings. This qualitative research explored childbearing desires and motivations among WWDs in Ghana.

METHODS

A cross-sectional qualitative study was conducted with WWDs aged 18-49 years in Northern Ghana. The distribution of participants by disability types were as follows: physical disability/impairment (n = 37); visual impairment (n = 11); speech and hearing impairment (n = 14); epilepsy (n = ten); and albinism (n = five). A pre-tested open-ended thematic topic guide was designed and used to conduct in-depth interviews. Interviews were tape-recorded and later transcribed for analysis. Transcripts were coded using QSR NVivo 11 software. Thematic content analysis techniques were used to analyse and present the data.

RESULTS

Nearly all the WWDs interviewed were sexually active, desiring to have children, and intended to have as many children as they could support. Strong desire to experience the joy of motherhood; fear of social insecurity; fear of old age economic insecurity; desire to challenge stigma and negative stereotypes about disability, sexuality and motherhood; and desire for self-actualisation, were key motivations for childbearing.

CONCLUSION

Our findings challenge existing negative public perceptions about the status of WWDs in relation to sexuality, childbearing and motherhood. More importantly, our findings suggest that if the Sustainable Development Goals related to universal access to sexual and reproductive healthcare are to be attained, WWDs must be targeted with quality sexual and reproductive healthcare information and services.

摘要

背景

先前的研究突出了普遍存在的公众错误观念/认知,即认为残疾女性无性取向、结婚可能性较低且通常对生育不感兴趣。然而,高收入地区的证据表明,许多残疾女性有性活动,并且确实有或想要孩子。尽管如此,很少有研究关注低收入地区残疾女性的生育愿望和动机。这项定性研究探讨了加纳残疾女性的生育愿望和动机。

方法

在加纳北部对18至49岁的残疾女性进行了一项横断面定性研究。按残疾类型划分的参与者分布如下:身体残疾/损伤(n = 37);视力障碍(n = 11);言语和听力障碍(n = 14);癫痫(n = 10);白化病(n = 5)。设计了一份经过预测试的开放式主题指南,并用于进行深入访谈。访谈进行了录音,随后转录以供分析。使用QSR NVivo 11软件对转录本进行编码。采用主题内容分析技术对数据进行分析和呈现。

结果

几乎所有接受访谈的残疾女性都有性活动,渴望生育,并打算生育尽可能多的她们能够抚养的孩子。体验做母亲的喜悦的强烈愿望;对社会不安全的恐惧;对老年经济不安全的恐惧;挑战关于残疾、性取向和母亲身份的耻辱感和负面刻板的愿望;以及自我实现的愿望,是生育的关键动机。

结论

我们的研究结果挑战了公众对残疾女性在性取向、生育和母亲身份方面的现有负面看法。更重要的是,我们的研究结果表明,如果要实现与普遍获得性健康和生殖健康保健相关的可持续发展目标,必须为残疾女性提供高质量的性健康和生殖健康保健信息及服务。

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