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疾病相关养育压力与先天性心脏病儿童适应不良:正念作为调节因素。

Illness-Related Parenting Stress and Maladjustment in Congenital Heart Disease: Mindfulness as a Moderator.

机构信息

Department of Psychology, Georgia State University.

出版信息

J Pediatr Psychol. 2020 Nov 1;45(10):1208-1215. doi: 10.1093/jpepsy/jsaa081.

DOI:10.1093/jpepsy/jsaa081
PMID:33051657
Abstract

OBJECTIVE

Congenital heart disease (CHD) is characterized by structural defects to the heart or the coronary blood vessels and often requires surgical repair. Raising an infant or toddler with CHD can be challenging and lead to high parenting stress and maladjustment. The parenting literature suggests that mindfulness may buffer parenting stress. The purpose of this study was to examine whether mindfulness might moderate the relationship between illness-related parenting stress and maladjustment in parents of infants and toddlers with CHD.

METHODS

Parents of infants and toddlers with CHD attending an outpatient clinic provided background information and completed measures of illness-related parenting stress, mindfulness, and maladjustment.

RESULTS

Results indicated that illness-related parenting stress was associated with maladjustment, and mindfulness moderated this relationship. Specifically, illness-related parenting stress was related to maladjustment at low and average levels of mindfulness; at high mindfulness, there was no association between illness-related parenting stress and maladjustment.

CONCLUSIONS

Consistent with the broader literatures, our sample of parents of infants and toddlers with CHD reported high illness-related parenting stress and maladjustment. Building on other studies demonstrating the benefits of mindful parenting, our results suggest that engaging in mindfulness might thwart the association between illness-related parenting stress and maladjustment in parents of infants and toddlers with CHD.

摘要

目的

先天性心脏病(CHD)的特征是心脏或冠状动脉的结构缺陷,通常需要手术修复。抚养患有 CHD 的婴儿或幼儿可能具有挑战性,并导致高育儿压力和适应不良。育儿文献表明,正念可能会缓冲育儿压力。本研究的目的是检验正念是否可以调节 CHD 患儿父母的疾病相关育儿压力与适应不良之间的关系。

方法

在门诊就诊的 CHD 婴儿和幼儿的父母提供背景信息,并完成与疾病相关的育儿压力、正念和适应不良的测量。

结果

结果表明,疾病相关的育儿压力与适应不良有关,而正念则调节了这种关系。具体来说,在低和中等正念水平下,疾病相关的育儿压力与适应不良有关;在高正念水平下,疾病相关的育儿压力与适应不良之间没有关联。

结论

与更广泛的文献一致,我们的 CHD 婴儿和幼儿父母样本报告了较高的疾病相关育儿压力和适应不良。在其他研究证明正念育儿益处的基础上,我们的结果表明,正念可能会阻止 CHD 患儿父母的疾病相关育儿压力与适应不良之间的关联。

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引用本文的文献

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Stress and Quality of Life in Parents of Children with Congenital Heart Disease: Exploring the Mediating and Moderating Effects of Coping Strategies.先天性心脏病患儿父母的压力与生活质量:探究应对策略的中介和调节作用
Pediatr Cardiol. 2025 May 23. doi: 10.1007/s00246-025-03897-3.
2
Stress Coping Strategies in Parents of Newborns and Infants with Congenital Cyanotic Heart Disease with Regard to Stress Levels and Negative Emotions.先天性青紫型心脏病新生儿及婴儿父母的压力应对策略与压力水平和负面情绪的关系
Children (Basel). 2024 Apr 24;11(5):508. doi: 10.3390/children11050508.
3
Toxic Stress as a Potential Factor Inducing Negative Emotions in Parents of Newborns and Infants with Cyanotic Congenital Heart Disease.
毒性应激作为导致患有青紫型先天性心脏病的新生儿和婴儿父母产生负面情绪的潜在因素。
Children (Basel). 2023 Dec 6;10(12):1893. doi: 10.3390/children10121893.