Department of Psychology, Georgia State University.
Zero to Three, Research and Evaluation.
J Pediatr Psychol. 2019 Sep 1;44(8):980-987. doi: 10.1093/jpepsy/jsz026.
Parents of children with chronic medical needs report increased parenting challenges, poor sleep, and maladjustment. The impact of parenting stress on both sleep and adjustment has yet to be evaluated for parents of infants and young children with congenital heart disease (CHD). We studied the relations among parenting stress, sleep, and adjustment in parents of infants and toddlers with CHD. We expected that sleep quality would mediate the relationship between parenting stress and adjustment.
Sixty-nine parents of infants and toddlers with CHD were evaluated on self-report measures of illness-related parenting stress (Pediatric Inventory for Parents), sleep (Pittsburgh Sleep Quality Index), and psychological adjustment (Brief Symptom Index-18).
The parents of infants and toddlers with CHD reported elevated levels of parenting stress, sleep problems, and maladjustment. The positive relationship between parenting stress and parent maladjustment was mediated by sleep quality.
Findings suggest that parents of infants and toddlers with CHD report high parenting stress, poor sleep, and maladjustment. Analyses indicate the stress-adjustment relationship is mediated by quality of sleep. Given the multiple demands on parents of infants and children with CHD, it is important to attend to parents' overall functioning and mental health. Our findings highlight targets for intervention to improve the well-being of parents of young children with CHD.
患有慢性疾病的儿童的父母报告称，他们面临着更多的育儿挑战、睡眠质量差和适应不良的问题。然而，对于患有先天性心脏病 (CHD) 的婴儿和幼儿的父母，其育儿压力对睡眠和适应的影响尚未得到评估。我们研究了 CHD 婴儿和幼儿父母的育儿压力、睡眠和适应之间的关系。我们预计，睡眠质量将在育儿压力和适应之间的关系中起中介作用。
我们对 69 名患有 CHD 的婴儿和幼儿的父母进行了评估，评估内容包括与疾病相关的育儿压力（父母儿科生活质量量表）、睡眠（匹兹堡睡眠质量指数）和心理适应（简明症状量表-18）的自我报告。
CHD 婴儿和幼儿的父母报告称，他们面临着更高水平的育儿压力、睡眠问题和适应不良。育儿压力与父母适应不良之间的正相关关系是由睡眠质量介导的。
研究结果表明，CHD 婴儿和幼儿的父母报告称他们面临着较高的育儿压力、睡眠质量差和适应不良的问题。分析表明，压力与适应之间的关系是由睡眠质量介导的。鉴于 CHD 婴儿和儿童的父母面临着多种需求，关注父母的整体功能和心理健康非常重要。我们的研究结果突出了针对改善患有 CHD 的幼儿父母的幸福感的干预目标。
