地中海贫血：在新冠疫情反思中怀揣“希望”
Thalassemia: With the "Red" in the Bag Amid COVID-19 Reflections.
作者信息
Pavate Veeresh
机构信息
Faculty of Dentistry, McGill University, Montreal, Quebec, Canada.
出版信息
J Patient Exp. 2020 Aug;7(4):439-441. doi: 10.1177/2374373520951671. Epub 2020 Sep 1.
Abstract
This narrative piece written from a patient perspective angle who lives with a chronic condition-Beta thalassemia major (also known as Cooley's Anemia), a serious, life-long, genetic blood disorder. The narrative portrays how the present situation of COVID-19 pandemic adds an extra layer to the challenges in the lives of people living with thalassemia.
摘要
这篇记叙文是从一名患有重度β地中海贫血（又称库利贫血）的慢性病患者的视角撰写的，重度β地中海贫血是一种严重的、终身的遗传性血液疾病。该记叙文描绘了新冠疫情的现状如何给地中海贫血患者的生活挑战增添了额外的困难。
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Thalassemia: With the "Red" in the Bag Amid COVID-19 Reflections.
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