地中海贫血：在新冠疫情反思中怀揣“希望”
Thalassemia: With the "Red" in the Bag Amid COVID-19 Reflections.
作者信息
Pavate Veeresh
机构信息
Faculty of Dentistry, McGill University, Montreal, Quebec, Canada.
出版信息
J Patient Exp. 2020 Aug;7(4):439-441. doi: 10.1177/2374373520951671. Epub 2020 Sep 1.
Abstract
This narrative piece written from a patient perspective angle who lives with a chronic condition-Beta thalassemia major (also known as Cooley's Anemia), a serious, life-long, genetic blood disorder. The narrative portrays how the present situation of COVID-19 pandemic adds an extra layer to the challenges in the lives of people living with thalassemia.
摘要
这篇记叙文是从一名患有重度β地中海贫血（又称库利贫血）的慢性病患者的视角撰写的，重度β地中海贫血是一种严重的、终身的遗传性血液疾病。该记叙文描绘了新冠疫情的现状如何给地中海贫血患者的生活挑战增添了额外的困难。
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Thalassemia: With the "Red" in the Bag Amid COVID-19 Reflections.地中海贫血：在新冠疫情反思中怀揣“希望”
J Patient Exp. 2020 Aug;7(4):439-441. doi: 10.1177/2374373520951671. Epub 2020 Sep 1.
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[Cardiovascular manifestations in Cooley's anemia (thalassemia)].[库利贫血（地中海贫血）的心血管表现]
Arch Argent Pediatr. 1961 Sep;56:215-27.
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[Cooley's anemia. Thalassemia].[库利贫血。地中海贫血]
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Management of Cooley's anaemia.库利贫血的治疗
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Management of thalassemia major (Cooley's anemia).重型地中海贫血（库利贫血）的管理
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[Clinical considerations on thalassemia, Mediterranean anemia or Cooley's anemia].[关于地中海贫血、地中海贫血或库利贫血的临床考量]
Rev Med Moyen Orient. 1955 Apr-Jun;12(2):239-42.
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Thalassemia (Cooley's anemia) with bone marrow study; case report.地中海贫血（库利贫血）伴骨髓检查；病例报告。
Indian J Med Sci. 1957 Dec;11(12):994-8.
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本文引用的文献
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Occasionally a Patient: Always a Person.偶尔是患者，永远是个人。
J Patient Exp. 2018 Mar;5(1):63-64. doi: 10.1177/2374373517726074. Epub 2017 Sep 6.
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The psychosocial impact of chronic illness.慢性病的心理社会影响。
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