欧盟应积极推动并协调新生儿筛查计划。
European Union Should Actively Stimulate and Harmonise Neonatal Screening Initiatives.
作者信息
Loeber J Gerard
机构信息
International Society for Neonatal Screening Office, Burgemeester Fabiuspark 55, 3721CK Bilthoven, The Netherlands;
出版信息
Int J Neonatal Screen. 2018 Nov 14;4(4):32. doi: 10.3390/ijns4040032. eCollection 2018 Dec.
Abstract
Neonatal screening programmes have been introduced in almost all European countries. In practice there are large differences, especially in the panel of conditions that are screened for, often without clear reasons. Policy making on a European level is lacking in contrast to the situation in the USA. Professionals have the knowledge to expand the panels but are dependent on policy-makers for the necessary funds. This paper is a call on the EU Commission to take up a role in providing equal access to neonatal screening for all children within the EU.
摘要
几乎所有欧洲国家都已推行新生儿筛查项目。实际上，各国存在很大差异，尤其是在筛查的疾病种类方面，而且往往没有明确原因。与美国的情况形成对比的是，欧洲层面缺乏相关政策制定。专业人员有知识扩大筛查范围，但所需资金依赖政策制定者。本文呼吁欧盟委员会发挥作用，确保欧盟所有儿童都能平等获得新生儿筛查服务。
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