Kellar-Guenther Yvonne, Sontag Marci K, Linder Eric, Singh Sikha, Sheller Ruthanne, Ojodu Jelili
Center for Public Health Innovation, CI International, 7852 S. Elati St., #201, Littleton, CO 80120, USA.
Colorado School of Public Health, University of Colorado, Anschutz Medical Campus, Aurora, CO 80045, USA.
Int J Neonatal Screen. 2019 Feb 12;5(1):13. doi: 10.3390/ijns5010013. eCollection 2019 Mar.
The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs) conducts non-regulatory site reviews of state newborn screening programs in the US with the goal of providing comprehensive reports and recommendations to support quality improvements within the system. A detailed coding and qualitative analysis of data extracted from reports of seven programs visited between 2012 and 2017, of thirteen pre-site visit surveys completed by state newborn screening programs, and of information from interviews conducted with three site review experts revealed four common themes that exist across states within the national newborn screening system. These themes include opportunities to implement improvements in: (1) communications inside and outside of the state newborn screening program, (2) education, (3) information technology, and (4) operations. The cross-cutting recommendations provided by NewSTEPs within the comprehensive site review reports may prove valuable for all state programs to consider and to incorporate as quality improvement measures in the absence of a full site review. The analysis of the site review process and recommendations identified important opportunities for improvement, many of which were previously unknown to be common across programs, and also provided affirmation of known challenges.
新生儿筛查技术援助与评估项目（NewSTEPs）对美国各州的新生儿筛查项目进行非监管性实地审查，目的是提供全面的报告和建议，以支持该系统内的质量改进。对2012年至2017年间走访的七个项目的报告、各州新生儿筛查项目完成的十三份实地考察前调查问卷以及与三位实地审查专家进行访谈所获取的信息进行详细的编码和定性分析后，发现了全国新生儿筛查系统中各州存在的四个共同主题。这些主题包括在以下方面实施改进的机会：（1）州新生儿筛查项目内部和外部的沟通；（2）教育；（3）信息技术；（4）运营。在全面的实地审查报告中，NewSTEPs提供的贯穿各领域的建议可能对所有州项目都有价值，可供它们在没有进行全面实地审查的情况下考虑并纳入质量改进措施。对实地审查过程和建议的分析确定了重要的改进机会，其中许多机会此前并不为人所知是各项目共有的，同时也证实了已知的挑战。
